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03-10-2010, 07:41 AM
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#1
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Junior Member
Join Date: Oct 2007
Posts: 3
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5 Years Next Month
WOW 5 years already. I'm amazed how fast that went by. Original DX IDC, stage II, no nodes ER and PR + Her2Neu+
4X AC
12 Weekly Taxol and Herceptin
Herceptin for a year
33 Rads.
Complete Hysterectomy
Feel great loving live.
Miss all of the sisters and brothers we have lost and still pray for a cure.
Randi
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03-10-2010, 09:00 AM
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#2
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: 5 Years Next Month
Congratulations Randi! You give me so much hope...Wishing you a long and healthy life.
-shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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03-10-2010, 10:32 AM
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#3
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: 5 Years Next Month
Congratulations Randi. Wow, this is a good day! More good news! Thank you for sharing. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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03-10-2010, 10:59 AM
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#4
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: 5 Years Next Month
Randi,
Thanks for sharing. Many, many, more versaries for you.
Amelia
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03-10-2010, 03:05 PM
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#5
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: 5 Years Next Month
Congrats Randi. So happy for you
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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03-10-2010, 06:35 PM
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#6
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: 5 Years Next Month
I love hearing this type of news! I have almost the same dx and it makes me feel really good to hear this! Thank you!
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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03-11-2010, 05:30 PM
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#7
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: 5 Years Next Month
Randi. I just love reading these posts. I'm very happy for you. You will have many, many, many, many more 5+ celebrations. Who Hoo!!!
Kris...
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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03-12-2010, 05:47 AM
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#8
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: 5 Years Next Month
Many congrats to you Randi!!! x
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-12-2010, 08:02 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: 5 Years Next Month
Big Congrats!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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03-15-2010, 05:44 AM
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#10
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: 5 Years Next Month
Randi,
Congratulations on your 5 year aniversary. Many more to come.
Amelia
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03-15-2010, 06:14 AM
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#11
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: 5 Years Next Month
Congratulations, Randi!
__________________
For Nicola
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03-15-2010, 07:24 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Re: 5 Years Next Month
Yeaaah! And wishing you many many more anniversaries!
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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03-21-2010, 07:39 PM
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#13
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Re: 5 Years Next Month
congratulations!!!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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03-23-2010, 02:25 PM
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#14
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Member
Join Date: Mar 2010
Location: Bucharest, Romania
Posts: 20
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Re: 5 Years Next Month
I'm very happy for you, Randi!
Felicia
__________________
24.06.2009 - DX: Multicentric breast cancer stage IV with bone metastases, IDC grade 3, ER-/PR-, Her2/Neu +++, FISH +, proliferation index high (Ki67 50%), Richardson scale 8 of 9
01.07.2009 - 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
01.09.2009 - Right modified radical mastectomy, including 16 axilla nodes (3 positive).
22.09.2009 - Another 3 courses chemotherapy: Taxotere 75mg/m2 + Carboplatin AUC 6 + Herceptin 6 mg/kg - every 21 days; Zometa 4mg - every 28 days for bone metastases
02.12.2009 - PET/CT images shows no evidence of malignant tissue on the whole body
8.12.2009 - start radiotherapy 30 sessions
Herceptin and Zometa still
15.06.2010 - NED!!!
My story at: http://feliciaenache.blogspot.com/20...estea-mea.html
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03-23-2010, 03:44 PM
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#15
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: 5 Years Next Month
Congratulations and best wishes to you.
karen z
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