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08-23-2006, 03:34 PM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 290
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Mom's Bloodwork Update
Well friends, it appears that our Creator has heard all of your prayers and seen fit to keep His loving hand on Mom's shoulder a little longer. Mom's tumor markers are back and are as follows:
ACTUAL NORMAL RANGE
CEA (carcinoembryonic antigen)---> 2.3 ng/mL 0.0-3.4
CA-27.29 (cancer antigen)-- -------> 8 U/mL 0-40
HER2 SERUM ASSAY----------------> 2.9 ng/mL 5.1-13.5
I can't tell you all how much I appreciate your prayers. Clearly He is listening and has taken some of the huge weight off my shoulders and onto His. I was horrified when Mom was forced to stop her Herceptin because of low MUGA scores, and could not sleep wondering what was "stewing in the devil's pot" of cells. Considering the fact that Mom has had two surgeries, two rounds of XRT, 12/20 positive axillary nodes, and NO conventional chemotherapy, it is miraculous that she has not presented with distant metastases. I have Herceptin and the will of God Almighty to thank for it. God Bless you all, and praise be to the Lord for His endless mercy and love.
Sincerely,
Tom
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08-23-2006, 03:41 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Tom,
Such wonderful news!! Your faith is awesome!! I pray for continued good health for all of us.
Love and Prayers,
Lexi
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08-23-2006, 03:57 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 161
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Good news, Tom !!!
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08-23-2006, 04:16 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Great news Tom. I hope for good news for all of us!
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08-23-2006, 07:03 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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WONDERFUL NEWS Tom!!!!
Now, please do something for YOURSELF...you need the rest to keep taking care of your mother. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-23-2006, 07:07 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Amen! I think you should celebrate. Bev
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08-23-2006, 07:15 PM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Tom
I am so happy for your Mom.....what great news....you are such a wonderful son to do all you do....my prayers will continue for you both....she is a very blessed Mother to have a son like you!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-23-2006, 07:39 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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AMEN.
message would not post because too short. So
AMEN again! Thanks for sharing this wonderful news.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-23-2006, 07:51 PM
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#9
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Wonderful news, oh don't we enjoy hearing good news. Time to sit back and enjoy. Thanks for the update. hugs, Sandy
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08-24-2006, 12:36 AM
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#10
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Dear Tom and Mom,
Don't we have an Awesome God? It is so great when a plan comes together and you can Thank God for it?
Love and Blessings
Lu Ann
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08-24-2006, 12:39 AM
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#11
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Tom,
That's wonderful news. Your mother is fortunate to have such a caring and loving son. My thoughts and prayers are with you
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-24-2006, 06:25 PM
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#12
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Senior Member
Join Date: Dec 2005
Posts: 274
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Dear Tom,
Thank God for the good news. You will be Blessed for all you have done for your Mom.
Sincerely,
Liz J.
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08-24-2006, 06:59 PM
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#13
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Tom, I am just thrilled for you and your Mom. This is AWESOME news. I remember when they took the herceptin away...that had to of been darn right scary. But God is watching over your both. I am just so happy for you. I just LOVE to hear GOOD news. Makes my day! Now lets not forget to give YOU lots of the credit for all the GOOD care you have taking of your Mom. You stay on top of every thing and don't let anything get by you. Your Mom is SO BLESSED to have a son like you. There are many sons/daughters that could, should...but don't. You have always been there for her. That plays a BIG part in why she is still here too. (Between God & you...thats a great team.)
I will continue to keep your both in my thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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08-25-2006, 03:35 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Good show Tom. Also remember, you are supplementing your mother right and feeding her all the right things - tea, veggies, fish etc - all the right things. And all the research you've done on in this regard has paid off not only for you and your mom, but for us too (with all you've shared).
Thank God Tom that all is working out so nicely and you can prove a point that God gave you a brain to find out what to do, do it and continue to educate your mom's doctor and us - and you are rewarded. I am truly happy for you and this outcome.
Thinking of you in kindest regards
Becky
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08-25-2006, 08:55 PM
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#15
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Senior Member
Join Date: Nov 2005
Posts: 943
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PTL!Fantastic news Tom, you are so inspiring to these boards and to your mom too.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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08-25-2006, 10:35 PM
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#16
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Senior Member
Join Date: Apr 2006
Posts: 56
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 I am so happy to hear your good news! God Bless you and your mom.
With Love, Donna |
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