 |
10-01-2006, 02:07 PM
|
#1
|
|
Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
|
Lolly !!!! It's Your Day
Happy Birthday !!!!
Christine and Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
|
|
|
|
10-01-2006, 02:29 PM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Posts: 161
|
Best wishes Lolly!
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
|
|
|
|
|
10-01-2006, 03:08 PM
|
#3
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Cheers for you!
Have the BEST BIRTHDAY EVER.
I know your hubby and family will see that you do!
Let us know how you are these days. Maybe you haven't had recent scans and they are coming up. Like to see you get off the chemo!
P.S. I have a friend who is having good results against her stubborn lymph nodes with Avastin.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
10-01-2006, 04:15 PM
|
#4
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Dear Lolly
I hope you had a terrific day. Happy Birthday.
Becky
|
|
|
|
|
10-01-2006, 04:19 PM
|
#5
|
|
Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
|
Happy Birthday Lolly
I see that it is your birthday - isn't is wonderful to see our birthday's come Lolly?
I savor every one.
Hope everything going well for you.
Take care and have a glorious B day.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
|
|
|
|
|
10-01-2006, 05:21 PM
|
#6
|
|
Senior Member
Join Date: Dec 2005
Posts: 274
|
Happy Birthday
Hi Lolly,
Happy Birthday to you. Hope you enjoy the day.
Sincerely,
Liz J.
|
|
|
|
|
10-01-2006, 05:52 PM
|
#7
|
|
Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
|
Happy Birthday Lolly!
I sure hope you have a GREAT day. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
|
|
|
|
|
10-01-2006, 08:31 PM
|
#8
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Happy Birthday Lolly!! I wish you many more happy and healthy birthdays to come!
Hugs,
Lexi
|
|
|
|
|
10-01-2006, 08:34 PM
|
#9
|
|
Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
|
Happy Birthday. Always enjoy your posts. Many, many more. BB
|
|
|
|
|
10-01-2006, 08:54 PM
|
#10
|
|
Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
|
hope it is (was) a great one! and many many more...
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
|
|
|
|
|
10-01-2006, 09:57 PM
|
#11
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Ahhhh, thanks all  I had a great birthday and it really topped it off to check in tonight and see that you all remembered me! Thanks a bunch
Steph, I'm halfway through radiation to the right axilla while remaining on Xeloda/Herceptin (think synergy!). Hopeful this will eradicate the tumor(s) in this area for good, but scans won't be done till I'm finished, and my onc will probably want me to stay on the Xeloda for a while longer just to be sure we've cleaned up any remaining circulating cells. Thanks for the report about your friend on Avastin, I've been keeping that on the back burner as another option if I need it.
<3 Lolly |
|
|
|
|
10-02-2006, 01:03 AM
|
#12
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
HAPPY BIRTHDAY Lolly and may you have mamy more.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
10-02-2006, 04:09 AM
|
#13
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Lolly
You share a birthday with my Grandson!!!!! We celebrated his last night....hope it was happy and full of fun....it would be fitting as that describes you! Many many more to you...I am glad you are getting good response with the Xeloda/Herceptin Combo and radiation....tell your lymph nodes to call my lymph nodes and tell them to get with the program.....these things are like teenagers with a mind of their own!!!!
Love on your special day!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
10-02-2006, 05:21 AM
|
#14
|
|
Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
|
Lolly;
A very happy birthday to you!! I really didn't bother much with my birthday pre-cancer but now I love to celebrate them. Getting another year older means so much to me now....lol. I'm glad to hear things are going well on those nodes....I'll be watching for your posts and looking for you to be NED.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
|
|
|
|
|
10-02-2006, 06:42 AM
|
#15
|
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
@@@@@@@@
Happy
Birthday!
@@@@@@@@
Happy Birthday
|
|
|
|
|
10-02-2006, 08:08 AM
|
#16
|
|
Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
|
Happy birthday!
Hugs,
Karen
|
|
|
|
|
10-02-2006, 08:23 AM
|
#17
|
|
Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
|
A very happy birthday to you Lolly!
|
|
|
|
|
10-02-2006, 11:23 AM
|
#18
|
|
Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
|
I hope you have an awesome birthday and many. many more to come. Best wishes!!
|
|
|
|
|
10-02-2006, 11:39 AM
|
#19
|
|
Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
|
Looking for CINDEE
First, how could I not add my HAPPY BIRTHDAY WISHES TO LOLLY! Yes, I welcome everyone, as friends bemoan getting older. I try explain how each is a blessing. I know you, my sisters, get that. In fact, I embrace every single day! Wishing Lolly and all of us many reasons to rejoice.
Cindee had emailed me with stage 3 and Her2+ w/her mastec/hysterec/chemo/rads and wondering if she could now do anything other than worry. With a 7 yr old shes especially anxious. I was thinking, every 3 mnth blood tests, full range w/tumor markers are being taken I assume. I watch every #, save my own copies, check the normal ranges and question everything. Who has more time to be concerned about me than me? Even the best of docs are simply overloaded. Annual mammog goes without saying, but someone mentioned they also get a sono every time and that in between they get a chest MRI, which is more accurate. I went to my breast surgeon every 6 mnths, cause no one examines breasts better, until he retired. Haven't found anyone to my liking. Do self exams of course the first of every month. If you read my previous posts re my '98 liver mets story it should be a wake up call for all to monitor your own condition, keep files. I have blood tests, ECHOs, GYN stuff, Mammog etc. stuff all separated in chronological order, for comparison purposes. It's all in a big file I once called my CANCER file, which gave me the chills. Who would ever imagine including oncs in our phone books? After a yr I changed my file's name to WELLNESS. Survival is a mind set. I subtitled my file CANCER STOPS HERE.
Question. My new doc suggested a brain MRI, w/all the hoopla over BC mets traveling there. I knew they'd reported this at the San Antonio BC convention last winter. My doc wrote a script for same with and without contrast. When "I" reminded the cancer center that I needed a precert # (I'm 62 now, still not on Medicare, w/health insurance) -- the insurance co would only ok the brain MRI without contrast. After 3 people, the cancer center was told that IF they see anything, then they'd ok the test with contrast! It took me mnths to gather the courage to act and make the appt, for starters. I was afraid of the tube. Got a script for Ativan (2) to take before, to relax me. Had the test, aggravated w/the audacity of the insurance co and waited for results. Nothing seen but the report (which I asked for a copy of) said at the bottom that it was difficult to determine metastatic disease (as a metastatic BC patient/survivor) without contrast. Now I'm going to call my onc and ask what he thinks. Any input from you guys who are among the best informed and most caring human beings on the planet?
Still facing my 6 mnth pelvic sono, a colonoscopy (it's been 5 yrs) and of course my every 3 wk Herceptin -- giving over a 1/2 hr infusion by the way -- to add to my lengthy (SORRY ABOUT THAT, but 11 yrs of survival is a whole involved tale) post of yesterday. Man, it ain't easy being tough, strong, brave and determined -- smiling all the while. We're all heroes you know! Amazing SOULS with the Spirits of Warriors!!
With love,
ANDI
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:11 PM.
|
Linear Mode
