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03-31-2008, 03:38 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Chat Room - Wednesday and Sunday
The chat room is always open but on Wednesdays and Sundays at 9pm EDT will be a schedule that ensures folks will meet.
To get into the chat room hit the chat button above. Use your log in name and password. Then hit the "enter the chatroom" button.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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03-31-2008, 04:36 AM
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#2
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Senior Member
Join Date: Nov 2005
Posts: 943
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Hi Becky,
I am glad to see you're heading up the chat room. I didn't know that it was back online until today. I'm sure it will benefit, especially a lot of newcomers.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
Last edited by RobinP; 03-31-2008 at 04:38 AM..
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03-31-2008, 04:54 AM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Wonderful
Becky,
A big thank you... 
hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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04-09-2008, 07:44 AM
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#4
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Senior Member
Join Date: Aug 2007
Location: Newport Beach, CA
Posts: 161
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Hi Becky
I've got to check this chat room out. This will be a first for me, but I love the concept of real time, especially with you. LOL...and then some.
So, that's 6 p.m. on Wed. and Sun. for Left Coast left-handed people like me.
Thanks for the instructions, too.
XO,
Vic
__________________
Diagnosed 12/03 at age 53
1.5cm tumor, ER-PR-, Her2 3+(rt side)
Stage 1B, Three negative nodes from Sentinel Node Biopsy
Paget's of the nipple, Infiltrating Ductal Carcinoma and DCIS of the rt breast
Bloom-Richardson score 8/9, P53+ 60-70%, Ki-67+ 30-40%
Skin-sparing mastectomy with immediate lat-flap reconstruction and saline implants, 1/04
Chemo: FAC, five sessions every three weeks Feb.-May 04, then switched to HTC weekly for 12 weeks, June-Aug 04
Zometa every 6 months for osteopenia, started April 09
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04-13-2008, 09:37 PM
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#5
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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I'm sorry I just disappeared on Sunday night, my friends. My computer locked up.
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06-01-2008, 12:52 PM
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#6
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Senior Member
Join Date: May 2006
Posts: 3,142
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chat room
Hi,
Can someone please tell us what time zone the 6pm chat room meeting is located? Those of us in different time zones and countries have to calculate the difference.
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06-29-2008, 06:19 PM
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#7
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Going to chat
__________________
For Nicola
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06-29-2008, 06:56 PM
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#8
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Can't get it ... Had this problem before.
When I try to log in it does not accept my password.
I tried!
~~~~~~~~~~~~~~~~~~~~
Then got the bright idea to try to get in as a Guest. I just put in my Screen name and clicked on "register." Did not ask my password - just took me right in to chat.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
Last edited by StephN; 06-30-2008 at 10:36 AM..
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08-10-2008, 06:22 PM
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#9
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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what happened to chat nights?
__________________
For Nicola
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08-11-2008, 11:55 AM
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#10
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Senior Member
Join Date: May 2006
Posts: 3,142
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Chat Room - Wednesday and Sunday
Aloha,
Maybe people have been busy chat nights. I was there on Sunday, but nobody else was. I did show up a little late. It looked like you were there and left Bill. I stayed a few minutes, but left when nobody else showed up.
I also had trouble logging on. It wouldn't accept my password either, so I logged on as a guest. I can't join you folks every Sunday or Wednesday, but I try to go to the chat room on Sunday every 3-4 weeks.
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