UPDATE..ah short lived hope there! Twasn't tumor flare...not too surprised but a bit annoyed they didn't hold tx today so I could move on to the next (Gemzar/carbo). Oh well that gives me two weeks to gear up or THAT. Scan shows some little things resolving but some big things growing. Too bad not the other way around.
Bye bye peach fuzz
Hi friends! First, indulge my usual plea for good thoughts and prayers today as I have a scan "sometime" which was scheduled yesterday.
Since I started Navelvine Nov 20, it's just been a continued ball of confusion about what is going on. I have pain at the tumor site (which is now most of my liver!), skyrocketing ca 19-9 marker and slightly declining CEA, ca 29.29. The 19.9 is a weird pancreatic mArker which has always been the only one that ever came close to working for me. When they palpate my liver, they can't really feel much change,,,, nor was there much change on an ultrasound they did last week when my total bilirubin went up to 1.6 (usually itis around 1.0). So they can't tell if it is progression or tumor flare.
She has kept me on Navelbine in the context of there are only a couple of chemo options left, and I've been burning through them pretty fast so they want to be sure. So I'm bummed, sad, feeling like I'm running out of hope as well as options.
But I got this running through my head on Sunday, to the tune of "ball of confusion". Dating myself once again!
Markers goin up
Markers going down
Why? Who knows! But it makes me wanna frown
Run run run but you still can't hide
Oops - progression there!
Or is it tumor flare?
Hope so, cuz now I have a little bit of hair
Fuzz. Buzz. Cuz it's so soft up there
End of line? Not so fine. Graduations, obligations, in my prime, need more time
Options? Chemo? Radiation? Make me leave the reservation?
People all over the world are shouting KILL THE BEAST!...
Or shut it down at least...
Oh, and cancer sucks...
Still breathing for now...
Chris
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