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Old 07-25-2006, 01:45 PM   #1
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Should Borderline Her2+'s use herceptin??

Hi;

I am waiting this week for news that I can go back on herceptin. My onc ran an echo last week and said that if it was normal I would be continuing herceptin. I had heart issues which took me off it for the last 4 months but I have had it for 8 previously. Now, thinking of being borderline her2+ (by Fish) and ER+/PR+ I am wondering if it works for folks like me? I also am on Arimidex for the ER/PR+ part. I took AC and Taxol and radiation on the left side. I want to take it, don't qualify for the lapatinib (which I would love to take along with the herceptin) but just wonder. Anyone out there with info on this? Thanks

Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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