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Old 08-28-2008, 06:51 AM   #1
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Wink ~Believe51's 1000th Post Dedicated To Joe, Christine & My Her2 Family

JOE, CHRISTINE & FAMILY,
I thought the best way to celebrate my 1000th post was to honor this site and the family I have grown to love here. Without the education, support, love and prayers I have received here, I shudder contemplating the effects of our journey. I feel empowered and educated, loved and protected. This site has been our lifeline, our sanctuary and our haven.

There is no better place to be for us to get all which we need. You all have a special part if my heart and are included in daily life and prayers. We laugh, we cry, we learn and support here.

Now what else could Ed and I need?? My love to all for the wonderful help you have given us to move forward so completely with cancer life. You have breathed life back into us and also taught us to live again! We could never have done this without you. Thank you for helping us to see our life in color, for hearing the music again, for allowing us to have the best life possible! Love and Devotion....continued prayers.

Forever Endebted To You All,>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 08-28-2008, 07:07 AM   #2
Vi Schorpp
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Wow

that was a beautiful post...this site breathed life back into you as you, and Ed, do for this site. You're right, without this site we collectively shudder to think about facing the journeys we're on without the support, knowledge, good wishes and love from this site. Support is everything!
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3.5 cm, 0/19 positive nodes
Stage IIA
Her2++, ER & PR++
RB Mastectomy, 4 AC,
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Old 08-29-2008, 02:05 PM   #3
Believe51
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Talking Bump

This is dedicted to the ones I love. Have a great looooong weekend>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 08-30-2008, 01:24 AM   #4
harrie
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Believe51...thank you for your beautifully written words! Much of what you wrote speaks of how I also feel.
Hope you and Ed also have a wonderful long weekend!!
HarrieCanarie
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 08-30-2008, 06:17 AM   #5
karen z
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Beautiful post.
Hope you have a great weekend as well.
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Old 08-30-2008, 12:03 PM   #6
Chelee
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Believe, Your post was put together nicely. I think so many of us feel the way Ed & you do about Christine, Joe and this Her2 board.

Hugs!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 08-30-2008, 01:25 PM   #7
Joe
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To Marie and All:

All that Christine and I did was to provide all of you a house and a gathering place to meet.

The difference between a house and a home is the love and caring that the occupants have for each other and I wish to thank all of YOU for making our house a home.


We couldn't have done it without you.

Warmest Regards, Hugs, Love and Light !

Christine and Joe
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Old 08-30-2008, 02:56 PM   #8
Bill
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Marie, thanks for being you. You are so wonderful! I agree with all you've said. Joe, thanks agin to you and Christine and everyone else for all y'all do.
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Old 08-31-2008, 08:02 AM   #9
sarah
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Believ51, you put it perfectly. Couldn't make it without this fantastic site.
stay well and happy
sarah
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