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Old 06-09-2007, 08:57 PM   #1
Liz J.
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Posts: 274
Thank you and asking for prayers

Hi to my HER2 family,

First off I want to thank you for wishing me a Happy Birthday. This was what they call the "Big 50". And believe me no one let me forget that. I am very thankful for getting this far and for all the love and good wishes sent my way. And Chrisy that was my name in the chat room (good guess). I can't believe Becky remembered that. There was some confusion with my chat room name so I used that to get on. It was a nickname my dad had for me when I was a little girl (many moons ago). Anyhow, I have been biting at the bit to not say anything as I know this has not been the best of times for us, but I am just asking that you keep me in your prayers in the next few weeks. I found a lump in the left breast (the one thats left) about 3 weeks ago. I saw my surgeon and he also felt it. He sent me for a mammo/sono which came out ok. So I thought this was all good. I saw him Wednesday night and he scheduled me for a biopsy on 6/20. He is not an alarmist but said with the history it is necessary. My husband and I made plans to get away for this coming week for my birthday and his (which is 6/15) and we have not gone away for more than an overnighter in many years. Just one thing after another preventing a getaway. I am putting this on the back burner for now. I don't mean to bring anyone down. I am optomistic and if it doesn't turn out the way I am praying it will then I will deal with it. I know I have your support. If you don't see me on for the next week it is because I am disappearing for a bit. Please keep me in your prayers.

Thank you and God Bless,

Liz J.
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Old 06-09-2007, 10:49 PM   #2
kacey
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Thumbs up

Liz,I will keep you in my prayers and hope that all comes out for the good. Your dr. is right. I would certainly want a biopsy to make sure. God will be with you through this and we'll be here for you when you come back.

Peace to you!!! Kacey
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dx 9-13-05 MRM (lt)on 9-19-05
IDC stage llb grade 2 3/24 nodes+
ER/PR- Her2+++
Groshong placed 10-13-05 and chemo started
TCH x6 and continue Herceptin for one year every 3 wks
Rads x 33 (at the end of chemo) finished 4-01-06
20 months NED
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Old 06-09-2007, 11:01 PM   #3
Beckie
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Location: Norco, Southern California
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Have a great vacation! Forget about everything except you and your husband until you get back. It probably is a good idea to have the biopsy just so you and your doctor know you covered all the bases, but hopefully, it will come back negative. Take everything a day at a time as God gives us the strength for whatever we face each day. God bless.

Beckie

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Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today


I know Who holds the future, and I know He holds my hand.
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Old 06-10-2007, 05:15 AM   #4
Mary Jo
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Location: Sheboygan, WI
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Dear Liz,

I can only imagine your fear over this as any of us would feel as you are feeling. However, the good news is that you are following through to find out what is going on.

I ask God to let it be nothing and for His peace to surround you as you wait.

Hugs,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-10-2007, 08:31 AM   #5
MJo
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Location: Wilmington, Del.
Posts: 1,126
I am glad you shared your news. This is a fact of life that we all live with now. I hope this is a benign cyst. Whatever it is, you can treat it. You are in my prayers.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 06-10-2007, 09:15 AM   #6
Mary Anne in TX
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Hi Liz! Of course I'll be praying for you and believing that it is just a benign cyst too! I know how much you must have been looking forward to a get away! Hope you'll get yours and have some good news to celebrate on it! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 06-11-2007, 08:21 AM   #7
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Liz

Honey, never worry that you are bringing anyone down, we are all here for support and prayers. There would never be anytime that would be bad to say your mind and ask for help. Yes, many things have happened this week, but above all, that is why we are here!! Sending a gy-normus hug and plenty of prayers your way and hubby and I will keep you close to heart at this time of need. As a matter of fact, we are in a hard spot ourselves right now, something stopped working for my husband and we will be going to Dana Farber Cancer Institute in the next week or so. Cancer stinks!!! >Waiting For A Miracle>>Believe51...(Marie G)

HAPPY 50TH BIRTHDAY, LIZ AND MY HOPES FOR MANY MORE!!!!!!!!!!!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!

Last edited by Believe51; 06-11-2007 at 08:22 AM.. Reason: forgot the most important thing
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