My wife just found out recently that her breast cancer has spread again to her uterus which I understand is very rare. Her oncologist said in 20 years that this is the first time he has had a patient experience this particular metastasis. I have found very little information online. Has anyone else experienced this or know of anyone else who has?
I posted this on the newcomer forum but then thought maybe this one gets read more frequently.
Thanks,
Greg
08/03/10 ~ Dx Inflammatory Breast Cancer, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/27/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx.
10/25/10 ~ Scans show liver lesion is gone.NED! 
11/19/10 ~ Ended chemo. Continued with Herceptin-only tx every 3 weeks.
01/31/11 ~ Mastectomy
03/07/11 ~ Radiation
07/06/11 ~ Reconstructive surgery
10/10/11 ~ Annual PET/CT scan shows still NED! 
01/20/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Initially misdiagnosed as endometrial cancer.
02/01/12 ~ Hysterectomy(all "visible" tumors removed).
02/10/12 ~ Final Herceptin treatment.
03/09/12 ~ Begain Cisplatin/Adriamycin tx for endometrial cancer.
03/20/12 ~ Tumors dx to be breast cancer metastisis, not entdometrial cancer. Back to bc tx.
04/07/12 ~ Got married in Jamaica. 
04/10/12 ~ Began Tykerb/Xeloda tx. 5 Tykerb, 6 Xeloda. Three cycles Xeloda - two weeks on/one week off.
06/12 ~ PET/CT scans scheduled