 |
01-25-2008, 07:45 PM
|
#1
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
Needing Support
Well, I just feel that the rash is getting worse. I called the onc. on Wednesday and talked to him. He said we have to wait from my counts to get back up for new treatment. I won't see him until next Thursday. I know lots of people have gotten good results from Taxotere and Herceptin. I wish I could too.
Another concern is I have my period again and that is causing the breast to swell and the rash to get worse (I believe) because the lymphatic vessels are clogged. Gosh, I need this to turn around soon so that I can have the surgery to remove the breast. The doctors want the rash to shrink before the surgery.
Any suggestions for a next line of treatment?
Hugs,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
01-25-2008, 09:21 PM
|
#2
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Dearest Tonya
When they did the biopsy on the skin mets, did they redo the ER and PR (sometimes it can change and then you could benefit from Tamoxifen or some other anti-hormonal). Get with you onc and try some other chemo that works in another way that the taxanes. They aren't showing benefit (at least not now). There are plenty of things to try (Navelbine, Gemzar etc). There is the right thing out there for you.
Don't think about it now and have a nice weekend with that wonderful family.
Love to you
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
01-26-2008, 09:07 AM
|
#3
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Tonya,
Didn't you just start with the Taxatore? I can't remember if you're getting it every week or every three weeks. Sometimes the chemo takes a few cycles until you can actually notice a change. I did Taxatore to shrink my initial tumor which it did but it took a few cycles until we could actually notice a difference. Hang in there and try and relax. Give it some time and I'm sure when you see your oncologist on Thursday he'll have an idea of whether or not it's working.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
01-26-2008, 10:10 AM
|
#4
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Dear Tonya,
I cannot offer any treatment advice but did want to offer you my love and support. I'm so sorry you are having to go through this and can only imagine how stressful and anxious of a time it must be for you. It sucks.........to put it mildly.
Now, that being said..........from reading the other posts........I am encouraged for you and hope you are as well. There is a treatment that will kick this crap to the curb and maybe what you are on will do it but like some have said, it may take a bit more time to notice it. Otherwise it sounds as if there is plenty of arsenol out their.
I know "letting it go" is almost impossible and I'm sorriest about that. If I could take those feelings to myself, I would Tonya, but sadly, it doesn't work that way.
Praying for peace dear friend.................................
Hugs,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
01-26-2008, 11:37 AM
|
#5
|
Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
|
I am getting Taxotere every three weeks. I have had only one cycle so I guess I do need to relax. For some reason, I was thinking that people were seeing instant results on Taxotere so thank you Kate for pointing out to me that it takes time.
And thank you for cheering me up. Now I am going to take Becky's advise and enjoy my family.
Scans are coming up next week but I'll worry about that on Monday.
Hugs,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
|
|
|
01-27-2008, 06:46 AM
|
#6
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Good Morning, Tonya!
Give those kiddos some hugs and give that stuff some time to knock that stuff out!
I'm praying for you and thinking really good thoughts for you. Lots of love, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
01-27-2008, 07:57 AM
|
#7
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Good Morning Tonya,
Just wanting to say hello on this Sunday morning and praying your spirits are up today.
Love & Peace,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
01-27-2008, 09:54 AM
|
#8
|
Senior Member
Join Date: Apr 2006
Posts: 131
|
Toyna
I hope you have great sucess with the chemo you are taking .. PLease know you are in my thoughts and prayers..
|
|
|
01-27-2008, 01:52 PM
|
#9
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
HI Tonya,
Thinking of you and still holding on to the tx kicking those skin mets to the curb!
Big Hugs,
Lexi
|
|
|
01-28-2008, 03:59 PM
|
#10
|
Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
|
Good luck with your treatment. I will be thinking of you and keeping you in my prayers. Taxotere worked very well for me in the beginning of my treatment. I agree with the rest, relax and enjoy your family.
|
|
|
01-28-2008, 04:36 PM
|
#11
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Tonya
I know its hard but relax and give it time to do its job....sending lots of prayers that this will be the answer to saying good by to the skin mets for good.....Each new day the fight continues....toward NED.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
Thread Tools |
|
Display Modes |
Linear Mode
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 11:53 PM.
|