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01-05-2008, 02:25 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Looking back...how lucky we are!!
My parents just found a letter in their trunk that has been passed along to me. I just thought I would quote it here as I was shocked at how things have changed, and really how lucky we are today.
This letter was written on June 27<SUP>th</SUP>, 1933 (six months prior to her death) by my father’s mother. I believe she had breast cancer as it runs in her family but my father is not certain exactly what type of cancer it was as it wasn’t discussed with him. She died Christmas eve, 1933 when he was eleven. She was writing this letter to her daughter and discussed her illness and treatment.
“….I did not get up until the dishes were done this morning and then I didn’t want to get up very bad as I feel rather top heavy yet. I am getting Mrs. Piper to take me to Shedden to the Dr. this afternoon so I can get a blood test to see if it is getting along alright. I am only taking the tablets for my blood. As I am not getting any more appetite he said I may have to take some spirits to keep up my strength. I will take anything that will agree with me. He never comes so I will go to him today and if he does not give me a good examination today I will see someone else because I am getting tired of this.”
Reading this letter broke my heart as I realized that likely all she was given were iron pills for her blood. What spirits were I have no idea…..a brandy before bed? Unfortunately I'm sure many of us could look back on family members who were in similar positions as my grandmother.
<O </O Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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01-05-2008, 02:53 PM
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#2
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Thanks Cathy for sharing that "letter" with us. Yes, you are right. It surely shows each of us how far medical technology has come, doesn't it? We truly are blessed.
Again, thanks for sharing with us. I'm sure this "find" was touching, to the least, for you.
Blessings of Peace I send,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-05-2008, 05:02 PM
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#3
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Wow, Cathy, what a touching letter. Thanks for sharing it. It helps to put things in perspective. It's normal for most of us to complain and worry and whine at times, but that letter reminds me of how blessed and fortunate we really are. Hope you are well, Bill
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01-05-2008, 06:25 PM
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#4
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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I was told that just 10 years ago I would not have been eligible for the bone marrow transplant because of my ripe old age of 43 (last year), so I know first hand that we've come a long way...
My grandmother died when I was a baby of cancer. She was never properly diagnosed and never got the treatment she should have. We think it was thyroid cancer because of the few symptoms my mom remembers, but who knows...I've been lucky enough that my disease has been caught early enough to do something about it!!!
Thanks so much for sharing!! This is a great reminder to everyone why we should all get copies of all our tests and pathology...
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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01-05-2008, 06:37 PM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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My Grandma passed away in 1970 from b/c - and I didn't know it until after my dad passed and I found her death cert. in his files. (My dad was adopted, so her DX not speak to my DX). I know that she did not have any treatment for it, as we spent lots of time with her and she was "normal and well" until a few months before she suddenly passed. (we hadn't seen her for about 6 months). But then, she may not have even learned about it until it was too late... We are truly blessed to have the tests, scans and treatments that we now have.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
Last edited by hutchibk; 01-05-2008 at 06:40 PM..
Reason: typo
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01-05-2008, 06:38 PM
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#6
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Thanks for sharing the letter with us. It definately helps to make me feel blessed by my medical team. It is kind of the way I feel about all the researchers waking up each day devoting their life to cancer research. I wish I could thank each of them in person. 
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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01-05-2008, 08:52 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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I've always said that I would not have been a very good pioneer. How those people must have suffered from diseases of all sorts... and aspirin didn't come along until, when, around 1900?
I think too, of how many young women would have suffered from cramps every month with no relief available...childbirth...oh, my! I don't know how they survived.
Your grandma's letter from 1933...not much was known about cancer, much less how to treat it or how to handle pain etc etc.
I am very thankful to be living during this time...
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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01-06-2008, 10:38 AM
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#8
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Wow Cathy
how right you are - we live in such a different world.
I know that years ago the big "C" was never discussed. When asked by my doctors who in my family might have had cancer - I am never really sure since way back they did not know or would not say.
We have come so far and I think discussing it opening is such a help. I speak freely to whomever wants to listen since I believe this could help "save" someone's life by educating them.
There are still so many who think of cancer as a death sentence and quite.
but we know this is not so, especially in todays world.
That is why we have to spread the word in anyway that we can to make people more aware that it "can" happen to them.
Thanks for sharing the letter from your grandmother. We are so lucky to have come so far.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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01-07-2008, 08:32 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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What a touching letter to find and put things into perspective! We are indeed lucky to benefit from the experiences of those who walked this path before us. It reinforces my belief in living each day to its fullest with as much gratitude as I can muster! Thanks for sharing!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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01-07-2008, 09:13 AM
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#10
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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This was a very moving letter for me. Five of my mother's aunts died of breast cancer in the 1940s and 1950s. All were diagnosed in their 40s and all left young children. When I was diagnosed two years ago, I know it must have brought a lot of fearful memories back to my mother. I am grateful that, if I had to have this disease, I was diagnosed in 2005. Thank you for sharing this letter.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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01-08-2008, 07:02 AM
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#11
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Without Herceptin, most of us wouldn't be here. Let's hope it gets easier for future generations.
sarah
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