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Old 10-05-2007, 02:09 PM   #1
Ceesun
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Unhappy Feel So Sad Right Now

I just don't know, I feel so sad about this little 2mm...DCIS that will turn my life upside down again. It's not that I am so afraid of that because it certainly isn't like the invasive which caused me to have the lumpectomy four years ago, or the lung met last year which, as my onc said yesterday, has been resolved for a long time now, but now its bye bye breast....probably no reconstruction due to the many surgeries and complications I have had....and this is the "straw that broke the camel's back for me" as far as retiring from teaching. My clinical trial nurse said, "cathy, take the remainder of the year off if you can." I am lucky ( lots of earned sick time) that I can do that, but I don't like feeling forced out of my profession. I have taught since I was 22 and I felt this was probably my last year anyway.....but I wanted to walk out on my own terms....sorry, to sound so blue and like such a 54 year old baby....just tired I guess. thanks for listening friends.... Cathy...aka Ceesun. Feel like transitioning to my real name.
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Old 10-05-2007, 02:44 PM   #2
Mary Anne in TX
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Hi Cathy!
I do understand. I worked my granddaughter's school book fair this week a couple of days and tons of memories swept over me. I had taught and been a librarian years ago, and then did something else later. I realized just how much teaching gives back to the teacher. I did have the chance to encourage the librarian there to stay put and enjoy. My guess is that this experience will allow you to encourage someone else and be a mentor to others. You may or may not get to complete your year, but my guess is you will be an inspiration to many in the years to come! Here's hoping you get your wish. mary anne
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 10-05-2007, 02:53 PM   #3
Sheila
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Cathy
I know exactly what you are feeling...I gave up my nursing carreer 4 years ago at the age of 51...when I became a IV instead of a 1....it meant making a decision to keep changing oncologists as my job involved working all over the country, or sticking with 1 Dr. and 1 program....I chose my health...I miss my job, not to mention the income as SSD isn't the pay I was used to, but I have adjusted, I am able to spend time with grandchildren, my parents, my friends....it does take adjusting, but the rewards are huge....think of all the extra time to help others here on the board! You are in my thoughts and prayers Cathy, I know this is hard, but you will do fine.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-05-2007, 03:02 PM   #4
Lolly
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Cathy, I know you feel blue right now, and we can all relate to the frustration of having to change our lives because of BC. You just need to do what's best for your health, and later you'll be amazed you ever had time to work because your new life will pick up steam as projects and plans and travel fill the void. This time of transition IS sad, but it will become better.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 10-05-2007, 03:11 PM   #5
Becky
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It is so unfair that you have to go through this again. I can relate. Especially over a lousy 2mm DCIS (mine was 3mm). Such a little thing but such a problem. Take a deep breath.

If you are going to be off of work, write down all the things you would like to do with the time but couldn't because of work. Do you have a hobby or one you would like to take up? Reading and taking a nice leisurely walk everyday? Even the mundane - like, I like my house to be clean but don't have the time to clean everything every week (and no $ to hire someone else to do it). Cooking nice meals? You know what you really like or would like to try. Make the list (even going back to school for you - taking courses or helping at your place of worship). Then focus on that list - your happy list (sleeping in!!).

Try to smile too because the rest of the body kinda follows in a certain way.

Love and hugs to you Cathy
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 10-05-2007, 04:25 PM   #6
tousled1
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Cathy,

I'm sorry you're feeling so down right now. Yes breast cancer can and does turn your world upside down. Since you have the leave take the rest of the year off. There's nothing saying that you can't return to teaching next year. Try and remain positive -- there are so many things to look forward to.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-05-2007, 06:45 PM   #7
sassy
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Cathy,

If the thoughts of a mastectomy have you down, I have found that it has not affected my life at all. I had a left mast Feb 05 and have not had reconstruction. My husband is fine with that and I rarely even think about it. I may opt for recon at some point--it there if I ever decide I want to do it.

Take time now to take care of yourself--teaching will be there for you later if you decide you want to go that route.

Wishing you the best, and keeping you in my thoughts and prayers.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 10-05-2007, 06:50 PM   #8
Vanessa
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Hi Cathy,

I don't really have any more suggestions, but I do hope you feel better and find something to occupy your time that makes you happy. I have to agree with Kate, there is nothing that says you can't go back to teaching next year. Best wishes.
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Old 10-05-2007, 07:56 PM   #9
Mary Jo
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Hi Cathy,

I'm sorry you are having to go through this again. It seems so unfair BUT I guess we can't concentrate on the negative. Glass 1/2 full/1/2 empty scenario. I prefer to always look at the glass 1/2 full if possible. Of course, it isn't always possible and blue days are something we not only have happen to us but something we need to give in to at times. Sometimes we need let it all out and share with those who love us. Then we can regroup and find that glass 1/2 full once again.

The 1/2 full in your scenario is DCIS. I'm thanking God for you that it isn't invasive. You'll get through this as well and good will come from it. It always does.

Here's a gentle hug dear friend. Also I pray for God's Peace to wash over you as you journey down a different road in your life.

Love,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 10-05-2007, 08:24 PM   #10
lilyecuadorian
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Cathy "the figth is figthing" so figth fight and be strong ......(sorry my english second language)
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Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 10-06-2007, 12:18 PM   #11
PinkGirl
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sorry

Hi Ceese
Sorry you're feeling so down. I can really relate to what you are feeling. You have to deal with it AGAIN and you're tired of it. I know these feelings will pass and you will be ready to fight again. You can still walk out of your teaching job on your own terms - you just have to change your terms. Decide what you want to do for you, and then do it. You won't be getting "kicked out" of your job by cancer, you will be leaving on your own terms to go and kick cancer's butt. I like Becky's advice. Make it a new adventure - do all the things you've always wanted to do. Good luck with all of this
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-06-2007, 02:55 PM   #12
Barbara H.
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Red face Decisions

Hi Cathy,
My heart goes our to you and I can certainly relate because I am still teaching. Right now you are emotionally upset. You may really wish to retire, but at this time I would leave my options open because you may feel differently in a few months. Plan to take the leave you need, enjoy the time off, and make your decision later after you have had time to live and relate to this new experience.
Good luck with what ever decision you make. There are positives to what ever you decide.
Best wishes,
Barbara H.
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Old 10-06-2007, 06:24 PM   #13
Andrea Barnett Budin
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Wink Cathy, I Welcome You Into My Arms...

Every change in our lives is painful. Can't help but notice that one. And, bc is so indescribably life-altering -- it just adds insult to injury. You deserve better, but life is full of twists and turns we never planned on. What you can control is staying on top of your health and the course that must be followed. And that means you must be freed up with the time to do that.

No one but you cares as much or will spend as much time as you in ensuring that all goes smoothly and is overseen with discerning eye of a teacher. Use your skills to bring true quality to your life as best you can. Read books that will inspire you and touch your Spirit. See how remarkably words can impact your psyche and turn you around to greater awareness and deeper understanding. There's a cool list of books that was recently posted in a thread for those wishing to develop a book list. I know I contributed to it. So maybe you can get to it my hitting MEMBER LIST AND ANDREA AND FIND... I will search too for you and report back.

We all have blue moments, some lingering for days. It is your job to try to get in touch with your spiritual core. It is immensely elevating. It brings you into The Now and carries you forward and upward. BREATH, Cathy. Thank you so very much for sharing your true self with us. I can feel you even closer now, and I am so grateful for that gesture. Sending you loving, healing energy from my heart to yours, sweet Sister. So sorry you must dig deep for even more strength and courage, but in the end I just know with my gut that you will emerge greater than ever! I truly BELIEVE that, Cathy...

BIG HUGS,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 10-07-2007, 12:58 PM   #14
vickie h
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Cathy, you are so special

Hi CAthy, I remember when you changed Oncologists about a year ago and how painful that process was and I think of you today and how you have reached out to so many of us and shared that pain, and joy, and redemption. You have been brave enough to be fully alive on your journey, even through all the dark times, all the times when the clouds cover up the sun, and the rain drops fill our eyes. You are a survivor, dear sister, and your path has taken you into hills of fire and you have emerged, strong and determined and wise.
I think back to the moments we shared in our emails and I thank God for you everyday. I am on this journey with you, we all are sharing the path. Your tears are mine, and mine yours. I hold you close today with the knowledge that you are safe and loved completely.
My love and peace, Vickie
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Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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