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Old 04-09-2007, 04:14 PM   #1
theresaw
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Join Date: Apr 2007
Location: Maple Grove, MN
Posts: 67
Wink Today Last Day of Herceptin

Today was my last day on Herceptin, I was to continue until 10/07, but numbers were low on echogram, so my onco though it would be best to stop now. I had total 6 months of Herceptin. It was a strange feeling, knowing that I am done, but going to miss my treatment nurses. Happy to be off but sad at the same time. Does that make since. So where do we go from here. I was having some pain in my left side back area so we did xrays today. I am going to have another echogram next month. Other than that I will be seeing my onc every 3 months.
I love this site and I am glad to have found it...
Thanks to you all...
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Old 04-09-2007, 05:55 PM   #2
Mary Anne in TX
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Location: San Antonio, TX
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Good luck, Theresa! Keep us up on what is happening with you and how things are going. ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 04-09-2007, 08:29 PM   #3
Chelee
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Location: Southern, CA
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theresaw, Sorry to hear you had to stop your herceptin early. At least you got in six trts. Maybe you can start back up again in a couple months. Many times after a break from herceptin your heart will recover and you can go back on it. It might be worth mentioning to your onc and see if its a possiblity? I know how you feel about ending your herceptin as today was my last day of it. I did get my full year in but hoped they might let me have a couple extra trts of herceptin because I heard others got too.(But thats not looking very good.)

Like you, I will miss my chemo nurse and many others down there. Seems strange to be let lose. As to your back pain...I am not sure what that could be? But hopefully they will do some tests and get to the bottom of that. Let us know what they find out about your back pain. I am sure it will be caused from something your doing and don't realize. I know the worry you must have...we have all had it. Hang in there...glad you found us.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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