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			02-26-2007, 07:51 AM
			
							
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			#1
			
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				Hair
			 
			 
			
		
		
		
		Hey Guys.... It has been almost 4 months since my last A/C  (November 6th) and today I decided was the day to toss the wig and go for it with my new hair.  I am at work right now, and everyone was very supportive.  My hair is very short, but with some gel and a dose of courage I think it's going to be fine ! 
  
  
Just wanted to share my little milestone with you guys. 
  
LOVE TO ALL 
		
	
		
		
		
		
		
		
			
				__________________ 
				Susan V - Pittsburgh PA 
DX Age 37 on August 3, 2006 
Stage 1 Grade 3 
ER/PR + (Highly Positive) 
Her 2 +++ 
1.3 & 1.2 tumors right breast 
node negative 
lumpectomy 8-15-06 
A/C Began 9-5-06 Finished A/C 11/6/06 
Port Placement 9-15-06 
Negative Test for BRAC1 & BRAC2 10-25-06 
Began Tamoxofin November 21, 2006 
First Herceptin November 27, 2006 Continues every 3 Weeks 
First Radiation Treatment December 11, 2006 
35 Rads Completed 
Final Herceptin Treatment November 12, 2007 
Port Removal November 19, 2007 
Living Life to the Fullest !!
			 
		
		
		
		
		
		
	
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			02-26-2007, 11:44 AM
			
							
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			#2
			
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				Location: IOWA 
				
				
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		 Good for you!  I remember the first time I went without my wig, I was complemented on my "new haricut" by a minister in a church that we were attending on vacation.  That gave me so much confidence after that, I never even considered wearing my wig again.  I hope you get the same kind of positive comments to help build your self confidence! 
		
	
		
		
		
		
		
		
			
				__________________ 
				Andi 
-- ------------------------ 
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++ 
Diagnosed 6/30/05  
Lumpectomy 7/13/05 
Dose Dense A/C x 4 
Weekly Taxol + Herceptin x 12 
Remainder of year Herceptin Every 3 weeks (completes 9/13/06) 
Radiation completed 2/28/06 
Currently on Tamoxifen 
Dec 06 - Pleural effusion treated with pleurodesis 
Now er/pr-, her2++ 
1/07 started weekly Navelbine plus Herceptin 
Discontinued Tamoxifen 
4/27/07 CTshowed progression 
5/01/07 Began Tykerb/Xeloda + Zometa 
5/22/07 Stopped treatment due to great progression
			 
		
		
		
		
		
		
	
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			02-26-2007, 12:10 PM
			
							
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			#3
			
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				Join Date: Sep 2006 
				Location: Savannah,  Georgia 
				
				
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		 Hi Susan! 
  
Congratulations on your hair!  It felt funny for me at first, but quickly made me feel like I was getting back to my old self.  I have gotten so many compliments on it short that I might just keep it that way!  I also still have to use gel, but was able to get little highlights in it recently and was so excited to have a "style".  You will be surprised at how quickly it does come in. 
  
Love, Kelly 
  
P.S.- I was also so excited to use shampoo instead of a bar of soap!!!!! 
		
	
		
		
		
		
		
		
			
				__________________ 
				dx'd 05/06, 37 years old 
er/pr-, Her2+, grade 3 
double mastectomy, immediate reconstruction- implants 
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes 
all scans clear 
genetic testing- negative 
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin 
30 rads 
Herceptin weekly x 1 year 
Herceptin completed 08/07 
Port removed 12/26/07  MERRY CHRISTMAS!!!!!! 
 05/17/08  Two year anniversary NED 
 
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do." 
 
-Eleanor Roosevelt 
 
			 
		
		
		
		
		
		
	
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			02-26-2007, 12:32 PM
			
							
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			#4
			
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				Location: Sheboygan, WI 
				
				
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		 I, too, remember the day well. I remember sitting outside of work in my car saying to myself "you can do this." I did have on my pink Green Bay Packer hat though (baseball type) but like you all, received much support at work and once I did it I was fine with it. It was so liberating to lose that dang wig. 
  
 
Mary Jo 
		
	
		
		
		
		
		
		
			
				__________________ 
				"Be still and know that I am God." Psalm 46:10 
 Dx. 6/24/05 age 45 Right Breast IDC  ER/PR. Neg., - Her2+++  RB Mast. - 7/28/05 - 4 cm. tumor  Margins clear - 1 microscopic cell 1 sent. node  No Vasucular Invasion  4 DD A/C - 4 DD Taxol & Herceptin  1 full year of Herceptin received every 3 weeks  28 rads  prophylactic Mast. 3/2/06 
 17  Years NED 
 <>< Romans 8:28  
 
			 
		
		
		
		
		
		
	
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			02-26-2007, 01:15 PM
			
							
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			#5
			
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				Join Date: Jan 2007 
				Location: Thornhill, Ontario
Canada 
				
				
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		 Hi Susan, 
 
Good for you - I have just had my second chemo so I am in Wig mode - did your hair grow in differently - my onc. told me it will be thicker and curlier  - My original hair was very thick and curly - I wonder what will happen - also is the colour the same? 
  
Thanks for sharing 
Caya 
		
	
		
		
		
		
		
		
		
		
		
	
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			02-26-2007, 08:04 PM
			
							
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			#6
			
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			 Senior Member 
			
			
		
			
				
			
			
			
				 
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				Location: northshore suburb of chicago 
				
				
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		 I lost the wigs about 2 weeks ago.  I am not crazy about the real tight curls and even gel doesn't help.  In fact I haven't found a product that does and I have tried them all.  I already had one haircut but it didn't do much for it.  The curls are too tight to do anything with them.  To make matters worse, when they tried to color it, my hair wouldn't take up the color so it is a mousy grey brown.  I don't mean to sound like I am complaining because I really am glad to have hair again, but I will be happier when these curls relax a bit.  I never had curly hair before and I really loved my hair prior to losing it.  Sure hope it returns someday as it was because these tight curls are not very attractive to say the least. 
		
	
		
		
		
		
		
		
			
				__________________ 
				~Rina~ 
Dx:3/06 had a lumpectomy April 19, 2006 
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative 
AC 4 dense doses 
34 radiation treatments including booster doses 
receiving herceptin every 3 weeks since late August 2006 for 12 months 
			 
		
		
		
		
		
		
	
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			02-26-2007, 08:20 PM
			
							
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			#7
			
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			 Senior Member 
			
			
		
			
			
			
				 
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				Location: IOWA 
				
				
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		 When I was taking chemo the first time, my chemo nurses told me of a little boy that they had that took chemo 4 different times and each time his hair returned in a different color!  Mine came back with a lot more body and curls.  I was always a natural blond, my hair is now quite dark.  Several people I know had theirs come back kind of salt and pepper, but surprisingly, I didn't have any grey in mine.  I have worn my hair short ever since it came back in.  I really got to liking the ease of care and people kept saying they liked me in short hair. 
		
	
		
		
		
		
		
		
			
				__________________ 
				Andi 
-- ------------------------ 
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++ 
Diagnosed 6/30/05  
Lumpectomy 7/13/05 
Dose Dense A/C x 4 
Weekly Taxol + Herceptin x 12 
Remainder of year Herceptin Every 3 weeks (completes 9/13/06) 
Radiation completed 2/28/06 
Currently on Tamoxifen 
Dec 06 - Pleural effusion treated with pleurodesis 
Now er/pr-, her2++ 
1/07 started weekly Navelbine plus Herceptin 
Discontinued Tamoxifen 
4/27/07 CTshowed progression 
5/01/07 Began Tykerb/Xeloda + Zometa 
5/22/07 Stopped treatment due to great progression
			 
		
		
		
		
		
		
	
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			02-26-2007, 10:57 PM
			
							
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			#8
			
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			 Senior Member 
			
			
		
			
			
			
				 
				Join Date: May 2006 
				Location: California 
				
				
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				How exciting!
			 
			 
			
		
		
		
		I was diagnosed at age 38, my daughter was only 7, she's now 20 and in College (of course). Even though the cancer came back three years ago-it will be four years July 16, am grateful to be here thanks to God and Herceptin.  
  
I remember when my hair came back, I attended the Office Christmas Party, and took a lot of pictures, you can always go back and say: Oh My God! iS IT REALLY ME! It's a lot of fun to have pictures taken throughout your growing hairs!! Glad to hear you're doing great. 
  
P.S. I even had Glamour Pictures taken along with my daughter, love them! 
		
	
		
		
		
		
		
		
			
				__________________ 
				1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3. 
28 nodes neg 
Er,Pr, Positive HER2 status unknown 
2003- Recur to rt lung.July 16 ( B-Day!)  
Her2+++ Er,Pr, Negative 
2003 - Aug04--Navelbine + Herceptin 
2004- 2007--NED - Herceptin, only 
2007 Feb-April Xeloda added to hereceptin 
2007-May Back on Navelbine+Herceptin  
2008-Feb-Mar 15 Ses Rad to Rt. Lung 
2008- Oc 17 Add Tykerb to Herceptin 
2009- June-- Discont Tykerb 
2009 July 7--Current Taxol + Herceptin 
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.  
2010-Aug Accepted to TDM1, no SE, except liver count went up. 
2010-2011 September got kicked out of the trial, due to a small spot found on  lung. 
2011- 2012 September thru early 2013 on Herceptin 
2013- March Bone density shows small spot on 5th rib. 
2013 -  April 4th appt with onc. will post after discussing course of treatment.  
2013-March-April Cyber knife to brain and radiation to rib.  Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.   
2013 April   Herceptin- TDMI  
2013 Sept   Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results. 
2013  October Brain MRI- mixed response. Will see Onc/rad on Halloween.  
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May. 
2013 December  Continue Herceptin and Perjeta. Stable at the moment. 
2014  February Brain MRI -clear! 
 2014 January  Added Taxotere to Perjeta+Herceptin. 
2014  March   Stopped chemo-chest ct-scan next. 
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin. 
2014 April Perjeta+ Halaven  
2014 April  CA2729 went down 60 points after one cycle. Cough does not want to go away.  
2014 June Continue on Perjeta + Halaven-- no more cough. Stable 
 2014 June  Back on Herceptin + abraxane
			 
		
		
		
		
		
		
	
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			02-27-2007, 07:34 AM
			
							
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			#9
			
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			 Senior Member 
			
			
		
			
				
			
			
			
				 
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		Thanks for all the responses....I am here at work today smiling as I read each and every one.  It is sooo great to have people who REALLY understand just what you are going through.  I love having all of you to "talk" to   
Funny...my hair is very short, straight like before and very dark.  I had heard all the stories about getting curly hair after chemo, and I was sort of hoping for that for a funny reason.  My 6 year old daughter has the most beautiful long curly hair (Not sure where she got it from ! )  Anyway, naturally she hates it, and wants straight hair.  I was hoping to get some curly hair to be like her for a while so that we could both have curly hair !  No luck though......straight hair for me !!
  
Love to all of you  
		
	
		
		
		
		
		
		
			
				__________________ 
				Susan V - Pittsburgh PA 
DX Age 37 on August 3, 2006 
Stage 1 Grade 3 
ER/PR + (Highly Positive) 
Her 2 +++ 
1.3 & 1.2 tumors right breast 
node negative 
lumpectomy 8-15-06 
A/C Began 9-5-06 Finished A/C 11/6/06 
Port Placement 9-15-06 
Negative Test for BRAC1 & BRAC2 10-25-06 
Began Tamoxofin November 21, 2006 
First Herceptin November 27, 2006 Continues every 3 Weeks 
First Radiation Treatment December 11, 2006 
35 Rads Completed 
Final Herceptin Treatment November 12, 2007 
Port Removal November 19, 2007 
Living Life to the Fullest !!
			 
		
		
		
		
		
		
	
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			02-27-2007, 12:32 PM
			
							
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			#10
			
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			 Senior Member 
			
			
		
			
				
			
			
			
				 
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		 you are the first person i heard of whose hair grew back curly.  i thought everyone grew back curly.  well, i guess we are never happy with the type of hair we have and we just need to learn to be happy we have hair at all!  i keep telling myself that but there are days where these tight curls drive me crazy.  i also came back very dark and grey.  triple yucko as far as i am concerned.  the color didn't take the first time so i am hoping the next time to have better success with that.  you could always get a perm to look more like your daughter's hair. 
		
	
		
		
		
		
		
		
			
				__________________ 
				~Rina~ 
Dx:3/06 had a lumpectomy April 19, 2006 
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative 
AC 4 dense doses 
34 radiation treatments including booster doses 
receiving herceptin every 3 weeks since late August 2006 for 12 months 
			 
		
		
		
		
		
		
	
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			03-01-2007, 05:42 PM
			
							
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			#11
			
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			 Senior Member 
			
			
		
			
				
			
			
			
				 
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				Location: indianapolis, indiana 
				
				
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		 At first my hair was curly, but now it's back to normal.  It's also darker with more grey streaks than before. 
		
	
		
		
		
		
		
		
		
		
		
	
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			03-01-2007, 11:52 PM
			
							
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			#12
			
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				Location: Colorado 
				
				
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				Just gotta share...
			 
			 
			
		
		
		
		Lisa lost her hair 3x (2 due to chemo and 1 due to WBR) and I know that hair/wig is a very personal decision - but Lisa decided she didn't like wigs and bald she was (her words) "A walking Pink Ribbon".  It was amazing the number of people that would stop and chat - sometimes long chats while trying to run short errands!  But every minute was worth it.  Kids are priceless - they have not been too desensitized yet!  I remember once a ~3-4 year old girl was staring at Lisa in the grocery store.  Lisa got down on one knee and talked to her - as we walked off we heard her say "Dad - I think she's a girl..." 
  
The funny part was when her hair grew back!  Bald, everyone recognized her as a cancer fighter, but when her hair was growing back - the looks she got - they all thought she some some kind og GOTH person! 
  
Anyway - congrats with the hair rebound, and although we've never met - I want to tell you YOU ARE BEAUTIFUL! 
  
Love and Light 
Mel 
		
	
		
		
		
		
		
		
			
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				Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
			 
		
		
		
		
		
		
	
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