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10-18-2006, 10:14 AM
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#1
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Wondering how Steph is doing?
I was thinking about Steph and wondering if anyone has heard from her. I think she was to have surgery last Thursday. She is always so good about keeping us posted. I hope she is doing o.k with no surprises! Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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10-18-2006, 11:14 AM
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#2
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Sandy,
Did Steph say she would be in the hospital for a few days in her post? Maybe that's why we haven't heard form her.
Hope you are doing well Steph.
Karen
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10-18-2006, 01:33 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Thanks for the concern
Sandy - I knew you have had me on your mind. I got home from the hospital early afternoon yesterday. Then I wanted to rest and wait for my son-in-law to drop off my prescriptions as they had not been faxed to the local pharmacy when we stopped on the way home. (Yes, my pain level was going UP!)
The main thing that I know right now is that there is very little "fluid" left in the area of repair. They say that it may even be blood that they see on the scan. I have no weaping or oozing from either the incision area on the back of my head OR where the Lumbar Drain was in my lower spine. They will check that all again the end of next week, when I go for the stitches to be removed.
I turned on my computer last evening and did not get very far when a problem occurred. Just got it sorted out.
So, I hate to use this term, I am "cautiously optimistic" that this repair will be successful. The early signs are good. I had to push the docs to discharge me as they want to make sure I am not overactive and lifting things I should not. My cleaning gal is here today so I am not having to do much. And I really did not think I could stand another day in the intensive care unit.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-18-2006, 01:55 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Steph,
I have also been waiting for your update. I am glad that you are doing as well as expected. I checked this site before I left for work this morning and saw that you had replied to Esther's post. I was so relieved. I hope that this leaking issue is solved once and for all.
Best,
Barbara H.
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10-18-2006, 03:27 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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So Glad To Hear From You Steph
I had been looking for a post from you and glad to read you are home and sounding good.
Now rest and repair -
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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10-18-2006, 03:59 PM
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#6
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Glad you are doing okay. Hope it continues and you mend well.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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10-18-2006, 06:38 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,747
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glad to see you are home!!! best wishes!
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10-18-2006, 06:45 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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So happy you got through it all and are doing better, Steph! You are amazing! Hugs, Tricia
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10-18-2006, 06:58 PM
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#9
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Glad to hear from you, now I can relax a little tonight knowing you are home and doing o.k. I get nervous when anyone tells me they are having something done to their spine. Take good care of yourself. Don't you just love your cleaning lady??? I have one and she is wonderful. Sending you a big hug, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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