one real question and one silly question

rinaina · 11-03-2006, 02:22 PM

Am I the only her2+ er/pr- stage 1 node negative person not getting taxol with herceptin? I had 4 dose dense tx of A/C and 7 weeks of rads and now getting herceptin, but it seems everyone gets taxol with it. My onc said I don't need taxol but I can't help but wonder. Okay now the silly question...how do I get my picture to show up with my posts? I downloaded it to the members gallery but how do I get it to show up next to my posts like so many of you have? Amazing I have time for such trivial things isn't it!!!

chrisy · 11-03-2006, 03:43 PM

Hi R

To get your picture to display, go to User CP, edit avatar. Then upload your avatar.

I can't wait to see your smiling face!

Serious question - sorry, I don't know, but have you asked your onc under what circumstances he/she would or would not include taxol with the Herceptin. That may provide some insight as to the thinking.

penelope · 11-03-2006, 04:04 PM

I did not get taxol either. 2/3 oncs said it would only be of 1% benefit to me given that I am node negative. I pray they are right, but often feel like you when reading the boards.

CLTann · 11-03-2006, 04:16 PM

I am ER/PR positive, HER2 positive, stage 1. It seems like I am the only one not doing chemo, nor radiation. Sometimes I wonder whether I made the right choice after mastec because I see no one here doing what I opted to do. Many times, I saw people with so much problems from the side effects of the treatments and I wondered who is right. Of course, I realize those who do not want chemo/radiation are not coming to this forum. My onc told me that if I opted chemo and Herceptin, my chance of recurrence would have reduced by less than 5%.

Ann

momdeeco · 11-03-2006, 05:11 PM

I am also ER/PR-, Her 2 +++, node neg. I entered a study and received 6 DD AC and 30 Rads. I went to 3 different doc's before getting the o.k. for Herceptin. I asked about Taxol and all 3 agreed I didn't need it. If not for this Her 2 Support Group, I probably wouldn't be receiving Herceptin. Everyone is wonderful!!! Good luck and I be praying for you.

rinaina · 11-03-2006, 07:44 PM

Thanks Chrisy for the technical guidance and hopefully I will have my pic up with future posts. So glad to hear there are others who didn't get taxol. Penelope, how did they determine that taxol would only benefit you 1%? CLTann, I can understand why you didn't want chemo and rads but does that mean you can't have herceptin? Momdeeco, sounds like our cases are about the same and I too thank G-d for this amazing forum.