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08-14-2006, 10:34 PM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 290
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Prayers Needed for Mom
We go to the onc tomorrow to see what to do next. I will request lots of bloodwork for tumor markers and a fresh MUGA to see if she can go back on her weekly Herceptin. I will also ask for follow-up MRI and PET to look for new disease. Please keep Mom in your prayers if you would, as I am afraid of what might have developed since they stopped her infusions.
Thank you all,
Mom and Tom
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08-14-2006, 11:35 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Dear Tom and Mom, You are both in my prayers. Lu Ann
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08-15-2006, 02:28 AM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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I hope the tests go well.
RB
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08-15-2006, 02:45 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Tom...
Gotcha covered Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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08-15-2006, 05:25 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Tom
You and your Mom are in my prayers for good reports....you are both fighters!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-15-2006, 05:49 AM
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#6
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Tom, you have mine for sure. hugs, Sandy
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08-15-2006, 08:53 AM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Strength and prayers being sent your way.
Karen
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08-15-2006, 09:41 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Tom,
count on it, I'll be thinking of both of you. Hope it all goes well.
all the best
sarah
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08-15-2006, 03:26 PM
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#9
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Senior Member
Join Date: Nov 2005
Posts: 943
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God bless, praying for you folks Tom.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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08-15-2006, 04:33 PM
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#10
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Prayers ...
coming your way for your Mom Tom.
Good luck
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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08-15-2006, 05:58 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Tom,
prayers for both you and your mom for good reports showing a strong heart and no "mischief" during the Herceptin holiday for your mom.
You already have a huge, strong heart and deserve to have a bit of mischief. I so hope you get good news as I know you have been very worried.
We are all blessed to have you - especially your mom.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-15-2006, 06:01 PM
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#12
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Senior Member
Join Date: Dec 2005
Posts: 274
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Prayers for you both
Hi Tom,
My thoughts and prayers are with you and your Mom. I know only too well how much love you can have for your Mom. My dear Mom passed away 3 years ago and it is something you never get past. Your Mom is blessed to have you. Please take care of yourself as well.
Sincerely,
Liz J.
Last edited by Liz J.; 08-15-2006 at 06:05 PM..
Reason: typo
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08-15-2006, 06:21 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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I'll say a prayer tonight for you and your mom, Tom. Hope all goes well.
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08-15-2006, 06:28 PM
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#14
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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I hope all goes well. BB
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08-15-2006, 07:39 PM
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#15
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Hi Tom, you know I will be praying for your mom. You are such a good son..God bless you and your mom. She has been blessed with you. I wish I had someone who would stand up for me like you do your mother. There have been times I have been feeling so awful and not knowing what to do, my husband will say "take a pain pill". I get so tired of fighting this by myself that I would love it if someone else (like my hubby) would step in and make a few phone calls or at least show some concern. I'm sure your mother loves and appreciates you for all you do for her...sherryg683
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08-15-2006, 08:57 PM
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#16
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Tom, hugs and prayers going out to you and mom tonight. I know you'll let us know how it went today when you've had time to "grok" it all, so in the meantime just remember that we're all keeping you both in our hearts.
<3 Lolly
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08-15-2006, 10:13 PM
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#17
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Senior Member
Join Date: Apr 2006
Posts: 56
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You and your mom are in my prayers. God Bless !
With Love , Donna
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