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Old 07-17-2013, 01:15 PM   #1
linn65
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Location: Attica, IN
Posts: 371
It started last week - still in a funk. :(

Last week when I found out 2 Herceptins left and happy for a day. Then back to My Ex, GF, her two kids and now my son is home for 6 weeks and is staying at the house we raised him in, but not I am resentful. I didn't make my ex sell the house because he is the one that wanted it to begin with, I didn't take 1/2 his retirement, and I didn't ask for child support. The reason is because he does love our son as much as me, and I knew he would take care of him fincially and he has.

However, by doing that I never had control of anything and he controled everything. 5 years later they are one big happy family that I helped build on a bedroom, a big family room, and a two car garage and the new 40 year old GF with Fake Breasts/irony has went in and is re-doing it all and down the road they will be getting married (after she is divorced from 2nd husband).

I never had to deal with this before but I feel like they are the family, and I don't exist. It has gotten me really down, and I don't know how to get over it.

Geez, I am beating cancer, I should appreciate the small things right???
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-17-2013, 02:10 PM   #2
Lien
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Re: It started last week - still in a funk. :(

It sounds really rough. On an intellectual level, it seems somewhat right, but on an emotional level it sucks big time! Ofcourse you feel left out and sad and frustrated. You had cancer, she has your ex & the house & the kids. But.... he will be her 3d husband and chances are that she will screw up this relationship as well. Hopefully your son will be old enough to distance himself from all that. If not, you will be there for him, and he will appreciate your unconditional love, and when he grows up, he will realize how unselfishly you behaved so he could be happy.

I married a man who had two sons from a previous marriage. His wife left him for another man, and took the kids. After 7 years they split up and now she is with a man who doesn't care for the boys. They are grown ups now, but they know who looked out for them and who loved them unconditionally. We are off for a two week holiday tomorrow and 3 of our 4 kids are coming with us. The 4th is staying at home, because he can't get away from work. Otherwise he and his girlfriend would probably be coming with us as well.

For years I told my husband: just wait, they will come back to you when they grow up. And they did. They have a wonderful relationship now. Kids know. Trust me. You will be ok and your son will see the truth.

Sending big hugs and a virtual shoulder to rest your head on for a bit.

Love

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 07-17-2013, 02:40 PM   #3
linn65
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Re: It started last week - still in a funk. :(

I know this is bad I hope it does get screwed up! She is 40 and got married 4/2010 2nd time and I don't even know if she is divorced yet. My ex is 55 and we only had the one child and he is 21. He lived with me until his senior year then went back and forth. He is playing bball on scholarship and she has taken him to campus visits because I was in treatment and I had no time off work to go. This is the first time in his life I didn't go and she got to do that too. My ex said you should be great full that someone I am dating will so that for your son.i was sad because it couldn't be me. College is 7 hours away, and I am hoping when he goes back I can make a trip. I just have no vacation time because of cancer treatment.

They have plenty of money and are buying all kinds of new things for the house. Things I wanted and never got like a deck! She is pretty, she is nice and my son likes her. Then her family all just LOVE my son so it's all close knit. It good for him but it makes me feel like what do I have to offer....I just love him.

His Dad said if he makes deans list he is going to buy him a new car. He has a black 300c now, special paint, great stereo installed, the nice grill and even two sets of rims for the tires. He got it when he was 16 and he has taken really good care of it but now a new car! His Dad is a hero, the GF is pretty, funny and nice it doesn't get better then that. And him being an only child he loves her two kids 16 and 12. It's a small town so I can't get away from it all, and I hate it. I sure cant move to get another job I have 3 surgeries coming up, and I need insurance. Ugh. Feeling boxed in....
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-17-2013, 03:34 PM   #4
Cat
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Re: It started last week - still in a funk. :(

Jaqueline was right, your son will know who loved him and at his age money and "things" seem important to him so unfortunately he is attracted to that. You will see with time though that love will take precedence over it all. Be there for him mentaly and emotionally and he will eventually understand it.
I don't have the experience of divorce but my daughter was 12 when I was first diagnosed and she had a very difficult time with it and pulled away and became very angry at me at times. We went through some very rough times with her. It was difficult to remind myself that she did love me underneath it all. She has gradually come back and we seem to be developing a more stable and mature relationship. She is 20 and still has a way to go but I see a light at the end of the tunnel. You will too. I'm not sure how or when but try to hang in there and he will come back to you when you least expect it.
I also don't live in a small town but I think you should stand tall and try to rise above it and if people know you they will know you are a good and worthy person.
Fake it till you make it. As they say (I always wondered who "they" are! lol)
Hugs, Cathy
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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Old 07-17-2013, 06:42 PM   #5
'lizbeth
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Location: Sunny San Diego
Posts: 2,214
Re: It started last week - still in a funk. :(

1) You are getting fake boobs too! Tell the plastic surgeon that your ex is marrying a younger women, and well . . . you just need to have a better results than she does (wink, wink).

2) Ask your son if you can have his old car.

3) Date a younger, good lookin' man.

4) Make a wish list of what you really want in life, and stick it up on the refrigerator.

5) You are still run down from cancer treatment, and likely are physically and emotionally fatigued. Stuff gets to you. Fresh raw, pesticide free fruits & veggies, lots of filtered water, and daily exercise will help. You can't pick your family, but you can choose friends. Call them up, invite them over or better yet make fun plans with them. Get a massage or a manicure, or something that makes you feel special and good.

Its okay to have a pity party, you've had some tough breaks. The feeling of resentment is actually common in cancer patients. You can do simple meditations and just repeat a phrase. Pick something like "I feel happy" or "I expect an amazing future".

Better boobs - that's the ticket!
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 07-17-2013, 07:14 PM   #6
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: It started last week - still in a funk. :(

Too funny I need better boobs then ex GF. And his old car is going to her 16 year old! Go figure.

I am still pretty raw with my emotion....my car wouldn't start this am, and my A/c was blowing hot air on way home. Well, brother in law gave me a jump, and I drove it to work and left it run for an hour. I went outside turned if off and it wouldn't start. I wanted to do the ugly cry. But I have to say I had a few tears, but I called place I got battery a year ago. He had me open hood, look at battery and give him numbers. Battery was under warranty! Got It jumped, took to car place, changed the battery and it started right up. They said a dead cell, and I said maybe my a/c will work now too. The guy chuckled but I started car up and a/c was blowing cold! Thank you Jesus! But my point that was enough to bring me to tears! Ugh.

I have never been depressed in my life but this year has been something. I did call and leave message for counseling appt. I don't want to be like this.

I want to walk around happy go lucky singing to myself. Crap. I sure do miss family it's all my life has been. Now, I am alone most of time, and again small town I don't know anyone single to do stuff with. My ex is from here I am from Evansville......Here it's 5 generations and I think you teach or farm. Lol

My sons first year of college I was a mess when he left, and I thought ok new life. Well, new life is cancer treatment. Wth.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-17-2013, 07:16 PM   #7
linn65
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Location: Attica, IN
Posts: 371
Re: It started last week - still in a funk. :(

Oh and I HATE my hair! I looked better bald...my hair is in a gangly stage, so I forget what it's like to feel pretty. One breast, boy hai cut its not a sexy look! Lol

My son and I are close just takes me for granted. He does tell me everything and anything. But it makes me feel like what value do I have to him in being his Mom! He has been home since Friday I have seen him once. We text everyday but that's it. It just makes me sick he is in the house we raised him in with GF, her kids and my ex And everyone is freaking happy!

I want to say tag your it! 2 more herceptin's and get thru that. And rest up before surgery October 24th, I did make plans to go on trip in sept for work, and 30 year class reunion in October.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-17-2013, 07:29 PM   #8
'lizbeth
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Posts: 2,214
Re: It started last week - still in a funk. :(

I think your hair looks adorable. You don't think like a guy. One boob is better than none. I know what you mean. I was so upset about having only one breast the breast surgeon lined up a plastic surgeon for an immediate construction. They are much different in size. The crazy thing is most people don't notice.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 07-19-2013, 10:03 AM   #9
snolan
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Posts: 436
Re: It started last week - still in a funk. :(

Your idea of contact with your son is different then his due to generational differences. You want him there with you and he feels his texting is the same thing. Communicate to him your feelings thats all you can do. How he responds may not satisfy you but at least you get it off your chest.
__________________
dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 07-21-2013, 01:05 AM   #10
SoCalGal
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Re: It started last week - still in a funk. :(

Make a list of all the ways your ex is an asshole. Read this list once an hour to remind yourself that "she" can have him. He's very pedestrian in his trade down in age and up In Tits. You need a man filled with love and kindness for you and the woman you are inside. Bodies age, sooner or later so what's inside is all we have. Keep setting the right example for your son. Be honest with him and tell him that while you are thrilled for his great relationship with his dad and his new family, you are feeling left out, forgotten and VERY vulnerable. Teach your son how to be a true man, and to see what you are going through and to hear what you need from him. That is a gift that no one else can teach him. It's so hard to be where you are. I've been there. It's been about 8 years and two GREAT relationships later for me. AND I am extremely close with both my kids who had to learn how to step up and be there for me during treatment since their dad stepped out. Stay strong!
__________________
1996 cancer WTF?! 1.3 cm lumpectomy Er/Pr neg. Her2+ (20nodes NEGATIVE) did CMF + rads. NED.
2002 recurrence. Bilateral mastectomy w/TFL autologous recon. Then ACx2. Skin lymphatic rash. Taxotere w/Herceptin x4. Herceptin/Xeloda. Finally stops spreading.
2003 - Back to surgery, remove skin mets, and will have surgery one week later when pathology can confirm margins.
‘03 latisimus dorsi flap to remove skin mets. CLEAN MARGINS. Continue single agent Herceptin thru 4/04. NED.
‘04 '05 & 06 tiny recurrences - scar line. surgery to cut out. NED each time.
1/2006 Rads again, to scar line. NED.

3/07 Heartbreaking news - mets! lungs.sternum. Try Tykerb/Xeloda. Tykerb/Carbo/Gemzar. Switch Oncs.
12/07 Herceptin.Tykerb. Markers go stable.
2/8/08 gamma knife 13mm stupid brain met.
3/08 Herceptin/tykerb/avastin/zometa.
3/09 brain NED. Lungs STABLE.
4/09 attack sternum (10 daysPHOTONS.5 days ELECTRONS)
9/09 MARKERS normal!
3/10 PET/CT=manubrium intensely metabolically active but stable. NEDhead.
Wash out 5/10 for tdm1 but 6/10 CT STABLE, PET improving. Markers normal. Brain NED. Resume just Herceptin plus ZOMETA
Dec 2010 Brain NED, lungs/sternum stable. markers normal.
MAR 2011 stop Herceptin/allergy! Go back on Tykerb and switch to Xgeva.
May-Aug 2011 Tykerb Herceptin Xgeva.
Sept 2011 Tykerb, Herceptin, Zometa, Avastin.
April 2012 sketchy drug trial in NYC. 6 weeks later I’m NED!
OCT 2012 PET/CT shows a bunch of freakin’ progression. Back to LA and Herceptin.avastin.zometa.
12/20/12 add in PERJETA!
March 2013 – 5 YEARS POST continue HAPZ
APRIL 2013 - 6 yrs stage 4. "FAILED" PETscan on 4/2/13
May 2013: rePetted - improvement in lungs, left adrenal stable, right 6th rib inactive, (must be PERJETA avastin) sternum and L1 fruckin'worsen. Drop zometa. ADD Xgeva. Doc says get rads consultant for L1 and possible biopsy of L1. I say, no thanks, doc. Lets see what xgeva brings to the table first. It's summer.
June-August 2013HAPX Herceptin Avastin Perjeta xgeva.
Sept - now - on chemo hold for calming tummy we hope. Markers stable for 2 months.
Nov 2013 - Herceptin-Perjeta-Avastin-Xgeva (collageneous colitis, which explains tummy probs, added Entocort)
December '13 BRAIN MRI ned in da head.
Jan 2014: CONTINUING on HAPX…
FEB 2014 PetCT clinical “impression”: 1. newbie nodule - SUV 1.5 right apical nodule, mildly hypermetabolic “suggestive” of worsening neoplastic lesion. 2. moderate worsening of the sternum – SUV 5.6 from 3.8
3. increasing sclerosis & decreasing activity of L1 met “suggests” mild healing. (SUV 9.4 v 12.1 in May ‘13)
4. scattered lung nodules, up to 5mm in size = stable, no increased activity
5. other small scattered sclerotic lesions, one in right iliac and one in thoracic vertebral body similar in appearance to L1 without PET activity and not clearly pathologic
APRIL 2014 - 6 YRS POST GAMMA ZAP, 7 YRS MBC & 18 YEARS FROM ORIGINAL DX!
October 2014: hold avastin, continue HPX
Feb 2015 Cancer you lost. NEDHEAD 7 years post gamma zap miracle, 8 years ST4, +19 yrs original diagnosis.
Continue HPX. Adding back Avastin
Nov 2015 pet/ct is mixed result. L1 SUV is worse. Continue Herceptin/avastin/xgeva. Might revisit Perjeta for L1. Meantime going for rads consult for L1
December 2015 - brain stable. Continue Herceptin, Perjeta, Avastin and xgeva.
Jan 2016: 5 days, 20 grays, Rads to L1 and continue on HAPX. I’m trying to "save" TDM1 for next line. Hope the rads work to quiet L1. Sciatic pain extraordinaire :((
Markers drop post rads.
2/24/16 HAP plus X - markers are down
SCIATIC PAIN DEAL BREAKER.
3/23/16 Laminectomy w/coflex implant L4/5. NO MORE SCIATIC PAIN!!! Healing.
APRIL 2016 - 9 YRS MBC
July 2016 - continue HAP plus Xgeva.
DEC 2016 - PETCT: mets to sternum, lungs, L1 still about the same in size and PET activity. Markers not bad. Not making changes if I don't need to. Herceptin/Perjeta/Avastin/Xgeva
APRIL 2017 10 YEARS MBC
December 2017 - Progression - gonna switch it up
FEB 2018 - Kadcyla 3 cycles ---->progression :(
MAY30th - bronchoscopy, w/foundation1 - her2 enriched
Aug 27, 2018 - start clinical trial ZW25
JAN 2019 - ZW25 seems to be keeping me stable
APRIL 2019 - ONE DOZEN YEARS LIVING METASTATIC
MAY 2019 - progression back on herceptin add xeloda
JUNE 2019 - "6 mos average survival" LMD & CNS new single brain met - one zap during 5 days true beam SBRT to cord met
10/30/19 - stable brain and cord. progression lungs and bones. washing out. applying for ds8201a w nivolumab. hope they take me.
12/27/19 - begin ds8401a w nivolumab. after 2nd cycle nodes melt away. after 3rd cycle chest scan shows Improvement, brain MRI shows improvement, resolved areas & nothing new. switch to plain ENHERTU. after 4th cycle, PETscan shows mostly resolved or improved results. Markers near normal. I'm stunned but grateful.
10/26/20 - June 2021 Tucatinib/xeloda/herceptin - stable ish.
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Old 07-21-2013, 07:06 AM   #11
karen z
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Re: It started last week - still in a funk. :(

You have gotten some incredibly wise advice from some very wonderful women on the board. More than a few of us have been where you are. Listen to the wonderful (and often funny) advice from such wise women. And, despite the tears (many of us have shed more tears than we can possibly tell you), remember to take care of yourself and your son in all the ways you CAN. You said "what value do I have to him in being his Mom!" Part of your value to him (other than being a good person to him and to others and teaching him by example) is that YOU ARE HIS MOM. NO ONE ELSE IN THE WORLD IS HIS MOM OR CAN EVER BE HIS MOM. THAT IS HUGE!! He is a major blessing and joy to you and no matter what else is going on in your life......(and believe me we all HAVE been where you are in one way or the other and many in the exact same way)>>>>>>>>>focus on being a good person, a good mom (you do not need money to do that) and take care of yourself. And those who say that your son will "get it" (if he doesn't now) are right. He is taking in everything and he WILL get it. Be tough, take care of yourself, try to not "fight against" things as much (easier said than done but I have found it is helpful) and be kind and generous of spirit to your son.
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Old 07-21-2013, 07:09 AM   #12
karen z
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Posts: 1,477
Re: It started last week - still in a funk. :(

Please read all the posts in the "Dear Sisters of our Beloved Jessica" link and watch the videos of Jessica (and re-watch them). Jessica was Stage IV: please listen to what she says about life. You will not be disappointed.
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Old 07-21-2013, 09:47 AM   #13
Becky
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Re: It started last week - still in a funk. :(

Well, crap on a crapstick. Time does heal everything though.

1. Your hair will be back and you can have it any style or color you want because you are starting from scratch (and I think it looks adorable now but since I've been there, done that - I understand the length and texture are not you). But it will be better than ever soon.

2. By the end of the year, you will be all healed from your reconstruction with brand new boobies that will not sag or age!!

3. Your son is young and will see things for what they are in due time. Even the GF who may become a stepmom will not be there forever. She will need someone to adore her when the "new adorable" phase wears off. And it always wears off.

4. The GF will age too adding to the unadorableness. And her 2 kids might start to give the two of them trouble as teenagers do.

5. You do get to concentrate on only yourself and loving your son. Do what you want and surround yourself with happy thoughts and loving friends and family. You survived this cancerland and it shows you're tough. Tougher than a GF who always needs a new man for self assurance (and she will need another one at sometime). Hopefully she doesn't get sick and find nothing there.

6. Read my Winnie the Pooh signature quote. That's my mantra and its so true. We each doubt ourselves but can (and do) step up to the plate. You have too. Your head isn't in the sand. Just don't let the turkeys get you down because you're so much better than everyone else. You are perfect. A perfect you. No Hollywood actress could ever capture you 100% because you are unique and special. Please never forget this ever. Your son loves you and inherently knows this and we all here do too.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 07-21-2013, 10:07 AM   #14
karen z
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Re: It started last week - still in a funk. :(

Becky's advice is "right on"!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !
So is her advice from Christopher Robin to Pooh (if only we could have this play in our ears on a regular basis)............it is such good advice as well.
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Old 07-21-2013, 12:07 PM   #15
IrvineFriend
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Re: It started last week - still in a funk. :(

I love everyone's advise! It's so true, the newness of the GF is going to wear off. Your ex has his own issues and I guarantee you, it's not peaches and cream every day. You have depth, you care about other people and are a wonderful friend. I will never forget you "being with me" throughout my first infusion through texting. You're a good friend and a good person and you are almost done with your treatments and surgeries.

Meetup.com has all kinds of activities for singles if you're willing to put yourself out there!
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Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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Old 07-21-2013, 01:17 PM   #16
'lizbeth
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Re: It started last week - still in a funk. :(

I still vote for going to Texas and getting a cowboy.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 07-21-2013, 02:51 PM   #17
SusanN
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Re: It started last week - still in a funk. :(

Hi Linn!!
WOW, what amazing advice, love and encouragement you are getting...
I went through a terrible divorce YEARS ago...even ended up in custody battle...thank GOD I won...at the time it started, my ex was dating...she didn't like me ONE bit...they ended up getting married...soon I did as well...
When my daughter had her "visits"...they adorned her...whatever she wanted...NOW...her dad has VERY little contact with her...I "knew" I had to try my hardest not to slander him or his wife in front of her (when she was young & even now) and pray that sooner or later she would see what was happening...

FORWARD...she is now 25...he rarely contacts her, through texting when he does...it is extremely sad/unfortunate...he can only blame himself as he lost contact with her...he allowed his wife to "wear the pants"...they had 2 boys together...

I tell my daughter that IT IS NOT HER FAULT and that he truly loves her...it just has gotten to the point where he doesn't know how to man/father up...unfortunately, she has lost respect for him...

Why do I tell you ALL this or a "slice" of this...because it WILL WORK OUT MOM!!! YOU ARE HIS MOTHER!!! HE WILL FOREVER LOVE YOU!!! $$$ & cars don't buy love...just be YOU...YOU ARE BEAUTIFUL...time has a way of healing...

I'm praying for you!!!
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10/18/12 Found pea size lump right breast
11/7/12 Biopsy
12/14/12 Lumpectomy
1/4/13 Rexcision, NO CLEAR MARGINS!! :(
2/11/13 Mastectomy with Expander Placed
2/15/13 INFECTION at Mastectomy site...emergency Surgery!!! Expander removed :(
DX: DCIS, IDC, Stage 2a, 2.7cm, 1/5 nodes positive
ER/PR-, HER2+++
3/28/13 Port placed
4/1/13 Begin 6 Cycles TCH Therapy
4/1/14 Finished Herceptin!!
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Old 07-21-2013, 03:41 PM   #18
'lizbeth
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Re: It started last week - still in a funk. :(

Wow Mister Sister, you have a daughter too? everyone on the board is full of surprises.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 07-21-2013, 04:37 PM   #19
linn65
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Re: It started last week - still in a funk. :(

Thank you to everyone for such encouragement and uplifting advise. My son came over today and we watched the movie The Heat. I know he loves me, and I was having a pity party for myself. I have known my ex and his family since 12 years old. Now, I know it's the final chapter of my life is over with him. I should have known that before, but I didn't then with GF it has made it more real.

Becky I have noticed your Winnie the Pooh line several times! I made it a FB status once! And of course I always loved Winnie The Pooh.

Julie, I think your pretty awesome, and I am thankful to have you as a friend. We sure have had some ups and downs, but we always end up laughing about something despite it all. Now, you have a place to stay if you come to Indiana, and I do in California. (I think I got the better deal) unless you want to watch corn grow. Lol.

Lizbeth, love,love, love all your thoughts, opinions, kind words.....all of it! And you are pretty darn funny too!

Karen, I have Watched the video and all the posts too. She was a pretty amazing person and such a sweet spirit. I chuckled to myself when she told the story about so much leftover food and she threw it in garbage for the homeless people. When I have thought or felt I have it rough, and reading about her at I think 33 and stage IV cancer and never giving up and doing all the treatments she amazed me with her courage. I have a another friend I have made in the Very beginning of cancer her name is Ann Murray Paige. If you don't know her she has quite a story and is stage IV cancer. She is still fighting with everything she has to kick cancers butt and it makes me feel shameful when I whine, complain, or think I can't do this. She made a documentary that I watched before I started chemo last Sept of. her treatment process. She battled and one the first go around. Then several years later it reoccurred and now it's in her liver, lungs and 3 months ago found it in her brain. Another inspiration to me just like so many people on this board!

I am humbled and grateful for everyone's support without judgment it has been a lifeline to me. Thank you.
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-21-2013, 06:10 PM   #20
IrvineFriend
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Re: It started last week - still in a funk. :(

You sound better! Texas isn't that far. When we get our foobs done, let's find some cowboys! I'm just along for the ride as I'm in a relationship, but what are friends for! We can have one big Her2 girl's night out with everyone!!
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Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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