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Perjeta Experience
Hello all --
I did 6 rounds of Perjeta, starting after 2 rounds of TCH. The onc thought he would add two more after the Taxotere was done to make it 6 treatments with Perjeta.
Shortly after, I went off to see my 2nd opinion guy, and he asked me why I was off the Perjeta? So I asked about it, and the nurse checked and saw that my initial insurance approval was for 12 rounds!!
So I ended up missing two treatments of the Perjeta and getting the Herceptin only, and then they started me back on a loading dose, so now I will get it until I have the 12 and then try to get more after that. The 2nd opinion guy said to stay on it as long as I can.
So this tells me when we're on a new drug our onc and nurses might not know the protocols for it, so it's good to keep an eye on things!
Rachael
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7/30/2012 Diagnosed with metastatic breast cancer
8/3/2012 CT scan mets to liver (major!!), lungs, spine, and skin
8/8/2012 Biopsy results: invasive ductal carcinoma
ER+/PR+/HER2+ amplification 4.8 (whatever that means)
8/13/2012 Brain MRI (clear); bone scan verified CT scan
8/14/12 started Taxotere/Carboplatin/Herceptin, 2 rounds (added Neulasta after 9/4 treatment)
9/4/12 CA 15-3: >3000
9/15/12 CA 15-3: 840
9/15/12 started Taxotere/Perjeta/Herceptin, 4 rounds (no Neulasta)
10/29/12 CT scan showed dramatic improvement in all areas - largest liver met 2.5 cm, largest lung met 10 cm
12/17/12 Started Perjeta/Herceptin, 2 rounds
12/17/12 CA 15-3: 17 Yay!!!
1/21/13 CT scan showed improvement - largest liver met 1.9 cm, largest lung met 2 mm
1/29/13 CA 15-3: 12 Started Herceptin only
3/12/13 CA 15-3: still 12 yay!! Back to Perjeta/Herceptin
3/29/13 CT scan more improvement - largest liver met 1.2 cm, some lung mets disappeared!
3/7/14 started Tamoxifen
6/27/13 - 1/2015 CT scan stable
Began a diet of only single ingredient foods and went nearly NED excepts for some tiny lung spots - ask me if you want to know more...
1/2015 - 1/2017 CT scan stable
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