 |
06-18-2012, 03:49 PM
|
#1
|
|
Senior Member
Join Date: Apr 2012
Posts: 87
|
Kidney Stones
It looks like MJ is on her second round of kidney stones since April. Are others having issues with producing kidney stones? Her oncologist has ordered a CT scan to make sure that's what it is but she is having pain in her lower right front side, just below her ribs, with fever. She got an infected ureter as well in the last go round. I'm guess the chemo (Xeloda) is playing a role in creating these stones? She is very frustrated with this new stone occurrence.
Thanks,
Greg
__________________
08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)
|
|
|
|
06-19-2012, 12:43 PM
|
#2
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Kidney Stones
Hi Greg and thanks for the update although I'm sorry to read MJ is dealing with this again, my hubby had them and I know how painful they are so please tell her my thoughts are with her. 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
06-20-2012, 07:55 AM
|
#3
|
|
Senior Member
Join Date: Apr 2012
Posts: 87
|
Re: Kidney Stones
Thanks Tricia. I'm just hoping it is a kidney stone again and nothing else.
__________________
08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)
|
|
|
|
|
06-20-2012, 12:11 PM
|
#4
|
|
Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
|
Re: Kidney Stones
I'm praying its nothing els also, Gods blessings to you both!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
|
|
|
|
|
06-20-2012, 12:14 PM
|
#5
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Re: Kidney Stones
Hi -
Just checking into see if MJ had her scan.
Really do hope it is the stones acting up again. Maybe she has to change something in her diet if she is now prone to forming kidney stones?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
06-20-2012, 12:52 PM
|
#6
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Kidney Stones
Sorry to hear about the pain and also hoping it is (once again) kidney stones. Please let MJ know she is in our thoughts.
|
|
|
|
|
06-21-2012, 08:48 AM
|
#7
|
|
Senior Member
Join Date: Apr 2012
Posts: 87
|
Re: Kidney Stones
Thanks for your kind words. MJ will have her cat scan tomorrow. She should also get the results from the urologist and blood work tomorrow as well. She's down to her final 4 days of Xeloda. This has been the chemo with the worst side effects for her so far. It has really taken a toll on her. This kidney stone (or whatever) issue on top of that is certainly not helping. Hopefully the antibiotics will do their magic soon and she will get some relief.
__________________
08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)
|
|
|
|
|
06-21-2012, 08:42 PM
|
#8
|
|
Senior Member
Join Date: Mar 2012
Location: Alabama
Posts: 121
|
Re: Kidney Stones
Greg:
Tomorrow I am having lithotripsy for the 3rd time to remove the 5th kidney stone I've had since dx 15 mons ago. The previous stones were uric acid based (chemo) from TCH, not dietary as most are.
Prior to dx I had only had 1 stone 28 yrs ago. Since dx I've also had numerous UTI infections but the differences are I run fever with the uti and have intense back (kidney) pain with the stones. I did have 2 stones without any pain or other symptoms--they showed up on a regular PET scan.
Lithotripsy is usually a outpatient procedure at the hospital done by the urologist. If a stint has to be inserted to move the stone pieces along that involves staying overnight but the need for it can't be determined prior to the procedure.
Yes, kidney stone pain is pretty close to that of contractions during child birth so I'm looking forward to getting this stone out! I haven't discovered ways to prevent the stones (other than stopping chemo which I will not consider) and neither the urologist or oncologist have tips either.
If MJ's scan shows a stone I'd easily recommend having the procedure versus enduring any more pain hoping it will pass on its own!
__________________
Vicki
Lord, give me the comfort of Your embrace and acceptance of Your will.
3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx.
7/11: Nothing left except Primary breast tumor now 1.5cm.
8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED!
10/11: NED! Continue Herceptin indef.
2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin.
5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly.
8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda.
10/12: Severe side effects. 3 weeks break from everything.
12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.
|
|
|
|
|
06-22-2012, 04:21 PM
|
#9
|
|
Senior Member
Join Date: Apr 2012
Posts: 87
|
Re: Kidney Stones
MJ had a CT scan this morning and does not have a kidney stone. They found a 3 x 2 inch liquid-filled cyst. It "may be" a lymphocele, which is a condition involving lymph fluid build up due to lymph node damage that can occur during a major surgery, such as her hysterectomy. The plan is for her to go in next Friday to have it drained if it is a lymphocele. It will be biopsied to ensure there is no spreading of cancer involved. If it is another kind of cyst, I'm sure it will need to be removed. We just don't know for sure what it is yet. There were a lot of malignant tumors removed during her hysterectomy, in the uterus, cervix, fallopian tubes and quite a few in lymph nodes so we want to be on the safe side. Thanks for all your comments. It will be a a nervous week wondering what the biopsy results will be. ~Greg
__________________
08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)
|
|
|
|
|
06-22-2012, 10:24 PM
|
#10
|
|
Senior Member
Join Date: Mar 2012
Location: Alabama
Posts: 121
|
Re: Kidney Stones
Have they given her something to ease the pain in the meantime?
__________________
Vicki
Lord, give me the comfort of Your embrace and acceptance of Your will.
3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx.
7/11: Nothing left except Primary breast tumor now 1.5cm.
8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED!
10/11: NED! Continue Herceptin indef.
2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin.
5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly.
8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda.
10/12: Severe side effects. 3 weeks break from everything.
12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.
|
|
|
|
|
06-23-2012, 10:17 AM
|
#11
|
|
Senior Member
Join Date: Apr 2012
Posts: 87
|
Re: Kidney Stones
She has Oxycontin but has only been using it to sleep. She hates to feel "doped up" so uses it sparingly. She's found one position lying on the floor with her back on a bean bag where there's hardly any pain. So, she spends a lot of time there. She takes ibuprofen for the fevers she's been waking up to in the mornings. That's probably providing some pain benefit as well.
I was so happy that her blood came back normal with no elevated liver enzymes. I was nervous about it recurring in her liver.
~Greg
__________________
08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)
|
|
|
|
|
06-23-2012, 11:19 PM
|
#12
|
|
Senior Member
Join Date: Dec 2011
Posts: 585
|
Re: Kidney Stones
Im happy it's a lymphocele and not a recurrence. Im just so sorry she is in so much pain. Lots of prayers and positive energy coming your way for an all clear with the biopsy on the fluid. Please keep us updated. ((hugs))
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
|
|
|
|
|
06-24-2012, 07:59 AM
|
#13
|
|
Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
|
Re: Kidney Stones
You are so good to your wife! Mj must be one beautiful woman. Your a very kind, caring and compationate man. I share your happiness in the good blood tests! I think of you both often and I'm always hoping and praying for you both. Gods blessings
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
|
|
|
|
|
06-24-2012, 08:54 AM
|
#14
|
|
Senior Member
Join Date: Apr 2012
Posts: 183
|
Re: Kidney Stones
Hello Greg (and MJ),
Your wife and I have the exact diagnosis (IBC: ER/PR negative and Her2+++ with a spot on the liver. My husband and I were married on July 24, 2011 and I was diagnosed in October. We honeymooned in Costa Rica. Amazing place. We are also in our forties. I wish you two all the best. I am truly blessed to have an amazing man who has been my rock during all of this. Just as you have been there for your wife. If you ever wish to ask questions of myself or my husband we would be glad to chat with you.
Take good care and enjoy the rest of this beautiful weekend.
Jackie
|
|
|
|
|
06-24-2012, 09:45 AM
|
#15
|
|
Senior Member
Join Date: Apr 2012
Posts: 87
|
Re: Kidney Stones
KsGal- It may be a lymphocene but we won't know until Friday just what it is for sure. It makes sense due to her hysterectomy that it could be a lympocene. I'm hoping!
Pray - Thanks.She doesn't like to go on these sites so I'm on here for her. I'm trying to find out information on how to best help her get through this. Sometimes I wonder if others think I shouldn't be on here because I'm not the one with the diagnosis. I'm thankful that I get the responses that I do for questions that are bugging me.
Jackie - Wow, such a similar diagnosis. I'd be interested in whether your treatment plan has been similar as well. MJ was diagnosed in August 2010. We got engaged on Christmas Eve 2010. So, treatment has been a big part of our life from before engagement through marriage. I sure hope we get a break so that we can just enjoy being married. We have 4 kids (age range from 10 to 16) between us from previous marriages so they can be a handful too. I'm hoping for a long period of time with no chemo. She so deserves it....
Thanks all who have responded. ~ Greg
__________________
08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)
|
|
|
|
|
06-24-2012, 04:57 PM
|
#16
|
|
Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
|
Re: Kidney Stones
Greg,
I think I speak for most, if not all, when I say you are most welcome here! You and MJ seem so young, and so much in love...I'm praying you have several more decades to cherish each other.
Best of everything this Friday,
Please, keep us posted on how MJ is feeling! (and you too)
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
|
|
|
|
|
06-26-2012, 08:13 AM
|
#17
|
|
Senior Member
Join Date: Apr 2012
Posts: 87
|
Re: Kidney Stones
Thanks Denise. MJ is taking her final 6 Xeloda pills today. She actually flew out to Ohio for work yesterday and will return Thursday. It is amazing that she pushes on through the pain she is having and the bad effects the Xeloda has had on her. She says this current pain is worse that the kidney stone pain she had before, which was considerable. Of course she didn't actually pass the stone as I've heard that is a horrible pain. She scheduled her biopsy for Friday to fit in with her work schedule this week. I hope she can continue to be as strong as she has been. I doubt that I could be as strong.
~Greg
__________________
08/10 ~ Dx IBC, Her2+++ ER-/PR- Stage 4, mets to liver. Age 43.
08/10 ~ Began 12 weeks of Taxetere/Carboplatin/Herceptin tx
[10/10 ~ Scans show liver lesions are gone. NED!
11/10 ~ Ended chemo. Herceptin-only tx
01/11 ~ Mastectomy
03/11 ~ Radiation
07/11 ~ Reconstructive surgery
10/11 ~ PET/CT shows NED :)
01/12 ~ Malignant tumors found in uterus, cervix, fallopian tubes and lymph nodes. Dx as endometrial cancer. Stage III2c
02/12 ~Hysterectomy(all tumors removed). Back to NED.
02/12 ~ Final Herceptin treatment.
03/12 ~ Began Cisplatin/Adriamycin tx for endometrial cancer.
03/12 ~ Tumors dx her2 metastisis, not entdometrial cancer. Back to BC tx.
03/12 ~ CT scan shows NED. :)
04/12/~ Began Tykerb/Xeloda.
06/12 ~ Ended Xeloda. Continuing Tykerb. Still NED.
09/12 ~ PET/CT scans show NED. : )
04/13 ~ Rash on original breast biopsied as cancer.
05/13 ~ Surgery to remove skin and tissue around rash. Continue Tykerb.
06/13 ~ PET/CT scans show NED : )
11/13 ~ Jaundice eyes and skin. CT scan show mets to liver as well as peritoneal carcinomatosis with malignant ascites. Began Abraxane/Herceptin tx.
02/14 ~ CT scan shows NED. :)
|
|
|
|
|
06-26-2012, 08:57 AM
|
#18
|
|
Senior Member
Join Date: Apr 2011
Posts: 403
|
Re: Kidney Stones
Hi Greg
I hope everything goes well with the biopsy on Friday and that your wife is still NED. It is amazing how strong people can be in circumstances like this. My boyfriend said the same thing that he didn't think he could handle it if it were him. Ofcourse i wish he never has to deal with what i am dealing with. The fight with cancer is a marathon. It takes courage, strength, belief and willingness to step back to recharge our body. Cancer may run ahead of us occasionally, however it does not mean cancer will win the race.
__________________
1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 11:36 PM.
|
Linear Mode
