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Old 05-13-2012, 06:01 AM   #1
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Happy Mother's Day...gratitude

Good morning all. I lost a friend 3 days ago to breast cancer. Last June as I celebrated my 6 year cancerversary, she was nearing her 1 year mark. She did not know what type of BC she had. All she knew was that she was 'triple negative', and she didn't really know what that meant either. In a week she learned that the shoulder pain she had been plagued with for weeks was bone mets. I am so sad for the loss of a friend to this dreadful disease.
As I get to celebrate another Mother's Day I was thinking about how grateful I am for my life. And this Support Group where I learned all about being an advocate for myself. It was the first place I found when I got the diagnosis, ER+ PR+ Her2+++. At the time, my first doctor basically told me that Her2+ was a 'very poor prognosis'. I soon learned that was not to be the case for me.
Thank you Her2 pioneers, researchers, doctors, brave folks involved in trials...leading the way in breast cancer treatment.
Happy Mother's Day
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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