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Old 06-20-2011, 05:36 PM   #1
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
6 years for me on june 14th

It doesn't seem possible that 6 years have passed since my diagnosis and my rush to learn about what it meant to be ER+ PR+ Her2Neu +++, invasive lobular...wow overwhelming!!! I had a strong support team of Bette (my partner) and sometimes my kids. Bette kept my moods up as far as possible, got on my case when I was freaking out, fixed my favorie foods when everything tasted like steel wool, took me to appointments, paid attention to the doctors when they seemed to speak russian as far as i was concerned! The emotional roller coaster has smoothed out considerably over the past 6 years. Every ache and pain does not require an immediate ER visit! I have met an incredibly strong and amasing group of women and men, through these boards, and in my outside world. There have even been days when I get ready for bed and realize I have not thought about cancer for an entire day!!! Thar
t is huge. I have changed my lifestyle. having cancer forced me to face my own mortality. I live in the moment and do things now, rather than postpone for another time. I have more patience, I eat better, get more exercise. In other words, my life is fun! Congratulations to all of you out there, doing the best that you can from day to day. It is the fight of our lives. We are worth it!!! Ask questions, educate ourselves, go with our gut instincts, and listen!! I am proud and thrilled to be here 6 years after my first tentative shy forays into support groups, This one is THE BEST!!! Thank you for helping me through my first 6 years ! XOX Suzan W
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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