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02-09-2010, 06:11 PM
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#1
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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How did it go today, Ellie? Thinking of you!
Wondering how your bone marrow biopsy went today, Ellie. I thought of you often while in a continuing ed. class. How long until they provide the results?
Keeping you in my prayers!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-09-2010, 08:14 PM
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#2
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: How did it go today, Ellie? Thinking of you!
Ellie I was just talking about you in my local bc support tonight. How are you doing? How did it go? Sending love and prayers, Alice ( Thanks Laurel)
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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02-10-2010, 01:44 AM
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#3
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: How did it go today, Ellie? Thinking of you!
Hi Ellie, As you probably know by now I sent you a PM...been concerned about you. I know how stressful times like this can be. I'm glad you now have this procedure behind you and hope the news is good. Meaning you just have slow lazy platelets. Wishing you the best. Sending warm healing thoughts and prayers your way.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-10-2010, 06:21 AM
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#4
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Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
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Re: How did it go today, Ellie? Thinking of you!
Ellie,
Just to let you know that I am thinking of you.
Hugs coming your way...Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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02-10-2010, 07:54 AM
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#5
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: How did it go today, Ellie? Thinking of you!
Hello everyone
I am so touched by your thoughts and good wishes and so grateful to have your support.
I had the procedure done yesterday by a specialist nurse at the hospital who had inserted my central line last year following my recurrence.The sample was taken from my right iliac crest. Whilst it was not pleasant it was bearable, being over in a matter of minutes. I opted for local analgesia and gas and air which I hadn't had since being in labour twenty years ago and this certainly helped!
I will have to wait two weeks till the results are ready and I am praying that they are low due to some other reason not cancer in any form!
They have also took a sample for cytogenetics which I understand will be used for research to try to help with identifying faulty or altered genes in bc.
Lots of love
Ellie
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02-10-2010, 08:45 AM
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#6
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: How did it go today, Ellie? Thinking of you!
Ellie,
Thinking of you. Glad your procedure is over. God Bless You.
Amelia
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02-10-2010, 09:02 AM
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#7
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: How did it go today, Ellie? Thinking of you!
Two weeks! Dang, they like to keep you on pins and needles over there, huh! We'll all be blue from holding our collective breaths.
Keeping the prayers burning.....
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-10-2010, 11:08 AM
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#8
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: How did it go today, Ellie? Thinking of you!
I'm glad that is behind you. Praying for good results.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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02-10-2010, 04:56 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: How did it go today, Ellie? Thinking of you!
So glad the procedure was'nt too unpleasant Ellie, and hoping the next two weeks don't drag too much for you and you get the results you hope for 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-10-2010, 05:05 PM
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#10
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: How did it go today, Ellie? Thinking of you!
Praying for good results on your biopsy. I am relieved that you weren't too uncomfortable and hope your benign results get here sooner than 2 weeks.
Hugs,
Lexi
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02-10-2010, 05:05 PM
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#11
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: How did it go today, Ellie? Thinking of you!
Thanks for the update, Ellie. Take it easy and know that we are sending good vibes.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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02-10-2010, 05:16 PM
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#12
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: How did it go today, Ellie? Thinking of you!
Hi Ellie. Glad your procedure is over.....wish you didn't have two weeks to wait for results. Perhaps they will get back to you sooner. Praying that you get good news.
Barb A.
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02-15-2010, 05:32 PM
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#13
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: How did it go today, Ellie? Thinking of you!
Thoughts and prayers are going out to you Ellie.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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02-19-2010, 10:20 AM
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#14
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Re: How did it go today, Ellie? Thinking of you!
sending prayers and positive thoughts your way!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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02-20-2010, 06:47 PM
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#15
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: How did it go today, Ellie? Thinking of you!
Ellie,
Will you get your results this week?
L.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-21-2010, 07:21 AM
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#16
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: How did it go today, Ellie? Thinking of you!
Hi Laurel
Will get results on Wednesday. Having a bad time at the moment, full of fear and anxiety and thinking I now have the darn thing everywhere!There has been so much sad news lately that I am struggling to believe thet we will ever get a cure in time for us all. Sorry to be so negative just can't stop crying.Thanks for your support.
Ellie
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02-21-2010, 07:29 AM
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#17
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: How did it go today, Ellie? Thinking of you!
Ellie - Just want to tell you I'm thinking about you. The overwhelming sad news has been too much and it does cause our own fears to surface with a loud voice. I hope you can find some way to get into a calm place the next few days. Praying that Wed. results will be good and you can let yourself breathe deeply again.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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02-21-2010, 07:37 AM
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#18
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: How did it go today, Ellie? Thinking of you!
Thanks Pam
I seem to swing from being so sad and tearful about all the losses that have happened of late to a huge sense of anger at the injustice of this disease and the lack of progress getting a cure or long term effective strategy for all.
I'm even angry with God at present for not responding to all our prayers and letting so many suffer!
Ellie
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02-21-2010, 08:07 AM
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#19
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: How did it go today, Ellie? Thinking of you!
Ellie, you would be certifiably psycho if you were not fearful. The recent losses to our Merry Band of Pranksters has rocked us all. I think fear and worry lie just beneath our facades of composure at all times, never leaving our conscious minds for long enough to be considered a peaceful respite. Only those of us who have literally trembled with the fear that accompanies those three little shattering words "you have cancer" can fully comprehend your anxiety. We are all anxious for you and for all who undergo their tests and scans.
I know none of us has a future beyond our next breath. Nothing is promised or guaranteed. Still what would a day be like without the specter of cancer over our shoulders? Oh to possess that mistaken confidence of our futures, of a long life, to be asleep at the wheel of our lives believing we have TIME.
The truth is none of us have any assurance of a tomorrow. The difference is that we no longer live in that pre-cancer wonderland where we felt confident of achieving old age. I joke that my soul goal in life is to LIVE to be a crazy, old, cat lady! My darling children tell me that I am well on my way to achieving my goal, because I am crazy, have very spoiled kitty-cats, and I am female (we'll leave the "lady" part for when I become one! HA!). All I need is the "OLD" adjective and I've made it!
Hoping for old age for us all! May we all be the craziest old bitties to ever walk this earth! Hail the Her2 heroes!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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02-21-2010, 02:17 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: How did it go today, Ellie? Thinking of you!
Ellie,
We've all been riding on and witness to a terrible rollercoaster this few months. Scanxiety is hard enough to deal with under normal circumscances, but everything seems so much more intense right now.
All the emotions you have are real and very justified. Don't worry about God, God can handle whatever we cast upon him.
We've all been there - and have imagined getting bad news far more often than we ACTUALLY got bad news. Still, that doesn't make us stop worrying.
I try (sometimes successfully, sometimes not) to put the scanxiety on the back burner and focus on, well, ANYTHING else. Try breathing, put on some disco music, rile up the crazy cats (make them crazy instead of you?).
Hang in there...
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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