 |
01-01-2008, 04:51 PM
|
#1
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Tricia K...
Tricia, I was reading the other New Years thread and read your post and my heart sank. When I read your post tears just filled my eyes. Your grandaugther fought a long hard fight no doubt and I wanted to tell you how very sorry I am to hear this. I can't even imagine what your entire family must be going through right now. My heart goes out you, your daughter & the entire family. Please accept my sincere condolence's on the loss of your dear grandaughter.
I will be keeping you in my thoughts and prayers during this most difficult time.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
01-01-2008, 05:00 PM
|
#2
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
I, too, offer you my sincere condolences dear Tricia. Such a sad time for you all. I learned of your granddaughter's death not until I read Andi's post to you under the "New Year's thread." She expressed how my heart feels perfectly.
May the Peace of our Lord comfort you and your family Tricia.
Love,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
01-01-2008, 06:04 PM
|
#3
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Tricia, you just continue to rise above the 20 foot waves which hit you. I too wish you my sincere condolences for the death of your granddaughter. As I sit now and watch mine (age 8) color and draw and use her creativity, I can't imagine losing her. She gives me purpose and pleasure and courage. May God give you and your family a special kind of peace. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
01-01-2008, 06:04 PM
|
#4
|
|
Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
|
Tricia, My sincere sympathies to you over the loss of your grandaughter. My prayers are with you and your family.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
|
|
|
|
|
01-01-2008, 06:07 PM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
Thinking of you
Hi Tricia,
I just wanted to offer my sympathy for the lost of your granddaughter. My heart also goes out to your daughter. It is so sad to lose a child, and to have to watch a child suffer. My heart goes out to you and your family.
Barbara H.
|
|
|
|
|
01-01-2008, 06:21 PM
|
#6
|
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
Dear Tricia - I am so very sorry about your loss. I know there are just no words to make this any better. I wish there were. My prayers are with you, all your family and especially your daughter. On the other hand, congratulations on your latest great-grand baby.
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
|
|
01-01-2008, 06:26 PM
|
#7
|
|
Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
|
Dear Tricia,
Please accept my sincerest sympathies on the loss of your precious granddaughter. I send prayers to your family, especially your daughter.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
|
|
|
|
|
01-01-2008, 06:37 PM
|
#8
|
|
Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
|
Tricia
I am so sorry about your granddaughter. I will remember your family in my prayers.
|
|
|
|
|
01-01-2008, 06:38 PM
|
#9
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Tricia
I was so saddened to read your post about your grandaughter...you are in my prayers as well as her Mom...I think that would be the worst pain to endure, the loss of a child. I know through the struggles with my own little grandaughter, how heart wrenching this can be....may her memories give you strength to go forward, and be the wonderful greatgrandparent for the new little one...life is so like the seasons, one ends and another begins.
You are in my thoughts and prayers.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
01-01-2008, 08:32 PM
|
#10
|
|
Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
|
Tricia, I was reading the New Years post and saw your post about your granddaughter. I am so sorry. The loss of ones children or grandchildren had to be the worse thing I can think of. My heart goes out to you and your family and I will keep you in my prayers.
God Bless
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
|
|
|
|
|
01-01-2008, 08:45 PM
|
#11
|
|
Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
|
Tricia,
My heart breaks for your loss. I am so sorry,
Marcia
|
|
|
|
|
01-01-2008, 08:53 PM
|
#12
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Tricia,
I am so sorry to hear of the loss of your granddaughter. You and your family will be in my thoughts and prayers.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
|
|
|
|
|
01-01-2008, 08:55 PM
|
#13
|
|
Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
|
So very sorry, Bev
|
|
|
|
|
01-01-2008, 09:05 PM
|
#14
|
|
Senior Member
Join Date: Dec 2005
Posts: 274
|
With Sympathy
Dear Tricia,
Please accept my sympathy and deepest condolences of the loss of your grandaughter. My prayers are with you and your family.
Sincerely,
Liz J.
|
|
|
|
|
01-01-2008, 09:09 PM
|
#15
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Thinking of you
Tricia, I know that mere words don't bring much comfort at this time, but please know that I am praying for you and your family and thinking of you. Whenever the wind blows around me and I hear all of our wind chimes singing freely, I think of my sweet Nicola, and as a warm breeze washes over you, may you find comfort in thoughts and memories of your granddaughter. She fought the good fight, and when you next hear the sweet, crisp chirping of the morning bird, smile and know that she is still with you. Love, Bill
|
|
|
|
|
01-02-2008, 08:35 AM
|
#16
|
|
Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
|
Tricia,
Let me add my condolences also. I cannot fathom how much it must hurt. However, I agree with you that she is in a better place. And how wonderful about the new ones to love. We bought a motor home and plan to head to Arizona by the 1st of March so hope to see you again.
Love & hugs,
Marlys
|
|
|
|
|
01-02-2008, 11:47 AM
|
#17
|
|
Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
|
I dont know what to say
Tricia
but how very sorry I was to read of your grand daughters passing.
This has to be the worse imaginable for you and your family but I still hear the faith in your voice.
Stay strong my friend.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
|
|
|
|
|
01-02-2008, 05:48 PM
|
#18
|
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
I am so sorry you lost your granddaughter. Even though mine is so young, I couldn't imagine my life without her. My prayers are with you and all of your family at this sad time!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
Last edited by juanita; 01-02-2008 at 05:48 PM..
Reason: spelling
|
|
|
|
|
01-02-2008, 07:05 PM
|
#19
|
|
Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
|
What dear friends you all are! I was so touched to see this thread and to receive all your sweet and loving thoughts. We will just "keep on keepin' on" with whatever life hands us, the good and the bad. Andi asked how many children my husband and I have had, to now have 32 grands and 32 greats...well, we cheated a little by combining 2 families. He had 5 children and I had 4 and we put them all together 27 years ago and look how they have multiplied! We have three adopted children between us and several adopted grandchildren. Our 2 oldest sons have, respectively, 15 and 12 grandchildren; only one of the 3 younger sons has a grandchild yet. Our oldest daughter has no grandchildren, the next one has one, the next, 2, and the second youngest is about to be a grandmother for the first time.She and her younger sister still have young children. Several of the grandchildren are not married yet or if married have no children yet. So while we probably have all the grandchildren we will have, there is still the potential for more great-grands! We dearly love them all and consider them all "ours", not "yours and mine". By the way, am I the only great-grandmother among all these wonderful warrior women? I certainly feel blessed to have lived as long as I have inspite of almost 23 years fighting BC and the last almost-four fighting heart problems, too. As I've said before, this life is the only school where you get the tests and then learn the lessons! I guess I am still here because I am a slow learner and need extra time to learn all life's lessons! Thank you all for your kind thoughts! Hugs, Tricia
|
|
|
|
|
01-06-2008, 12:10 AM
|
#20
|
|
Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
|
Tricia, My heart goes out to you and your family. I, too, lost my second daughter and I know there is no worse experience.
In sympathy and prayer,
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:19 PM.
|
Linear Mode
