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Old 09-06-2007, 07:04 PM   #1
dilly
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Angry public information

Okay. I hope you all are using a pseudonym, because if you do a search on your screen name, all your posts come up in google. I'm in the process of deleting some now.
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Old 09-06-2007, 07:10 PM   #2
Mary Jo
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Yep, dilly is right! I googled it.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 09-06-2007, 07:41 PM   #3
Marlys
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So???

I have been aware of this for some time and if finding out more about breast "canser" help some one else: great. I doubt if anyone can steal my identity from here.
Love & hugs,
Marlys
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Old 09-06-2007, 08:06 PM   #4
Catherine
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I believe you,but my name did not come up

Thanks for the heads up on the google search. I use my real name on the Her2 Site. My name is common....catherine Davis....when I googled it, I keep moving thru the pages and never found one that brought up my Her2 posts. I kind of do not want them just sitting out there. How do I delete. Should I change my name on the Her2 site.

Thanks for your advice.

What does Joe say?
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 09-06-2007, 08:17 PM   #5
Marlys
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Catherine,
Your posts are signed Catherine without the last name therefore you won't find them that way. But say you Google "catherine her2" your posts might come up. However, anyone reading the posts can still see everything you have posted just by looking you up in the members list. I don't know what DIlly is doing to delete them but they still seem to be showing under her name.
Hope this helps,
Marlys
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Old 09-06-2007, 10:20 PM   #6
Joe
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From Joe,

The HER2Support Group believes in the complete autominity of all of its members. We do not care what username you register under as long as you keep that username for all of your posts. All we require is that you have a valid email address. You have the option of making that available to all members or just to the administrator (myself).

WE WILL NOT SHARE ANY PERSONAL INFORMATION ABOUT OUR MEMBERS WITH ANYONE.

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Joe
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Old 09-08-2007, 12:47 AM   #7
mcgle
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Dear Joe

I sent you a private message entitled 'Privacy' on 29 August about this very subject. Perhaps you haven't seen it. Would be grateful for a reply.

Thank you.

Mcgle (UK)
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Old 09-08-2007, 04:48 AM   #8
Mary Jo
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That is correct.......this is an open forum. Anyone can read our posts. Like Joe said, our private information is just that, private, so no one has to worry. I found this thread interesting because I am so computer illiterate that I didn't realize if I typed in "marejo" I could find "stuff" out there by "marejo" It makes sense, if your name is out their in cyberland somewhere all you'd have to do is google and up it will come in. Amazing really, isn't it? How all that stuff can be found.

Make it a great day.

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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