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Old 07-17-2007, 05:38 PM   #1
LOPSIDED
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Join Date: Apr 2006
Location: FLORIDA
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Rare Krukenberg Tumor

Leave It To Me To Have A Rare Tumor. I Had My Hysterectomy Back In March And Was Told The Tumors On My Ovaries Were A Rare Krukenberg Tumor Caused From My Breast Cancer. I Have Been On Auto-pilot For Several Months. I Lost My Father And 1 Month Later My Cancer Returns. I Am Just Now Able To Read My Medical Records And Feel I Am Coming Out Of My Zombie Stage. Has Anyone Else Heard Of This Rare Tumor. From What I Read, Prognosis Seems Grim And Very Aggressive Cancer. I Am On Monthly Faslodex Injections And So Far So Good. Tomorrow I Go For CT Scan.
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SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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Old 07-17-2007, 06:03 PM   #2
Becky
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Dear Sheila

I am very sorry this has happened to you. I thought this rare event happened with stomach or colon cancer but not breast. However, bc treatment for mets should work just as well as it is still your bc. Why not go onto Herceptin along with the Faslodex. You are in new territory but this combo treatment may do very well for you.

My thoughts are with you. Big hugs to you
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 07-17-2007, 07:18 PM   #3
Soccermom
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Location: Bradenton,FL
Posts: 977
Dear Lopsided,
I do not know anything about this type of tumor so cant be of much help there. What I can suggest is that you go the ovcanet website,the the ovarian.org website,and the ovariancancer.org websites. Between the three of these excellent ovarian ca. sites there must be someone who has some good information for you.
I am so sorry that you are having to deal with another cancer,

Warmly,Marcia
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Old 07-17-2007, 07:25 PM   #4
Becky
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Sheila

Marcia is right that there may be some info there but there may be more under stomach cancer as these tumors tend to be mets from gastric cancer more than breast cancer.

Remember - this is NOT ovarian cancer. These tumors are only a secondary cancer that are mets from elsewhere - in your case from your breast cancer. Therefore, you should receive the same treatment one might get who develops mets to the lungs, bones, liver - the more common mets sites. Think of it in those terms and discuss with your onc if Herceptin, taxanes (plus the Faslodex you are on) are of use. I would imagine they would be.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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