 |
03-01-2007, 08:16 PM
|
#1
|
|
Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
|
MUGAs' after Herceptin TX is completed?
Hi there fellow Her2ers,
Was just wondering if others are having regular MUGAs after finishing Herceptin? I am not...although I did have an EKG prior to my surgery last week (almost said, "but I DID sleep in a Holiday Inn..." LOL .My Onc asked that the hospital fax her the results of the EKG...didnt know that an EKG would reveal anything about LVEF...hmmm...
Marcia
|
|
|
|
03-01-2007, 09:27 PM
|
#2
|
|
Senior Member
Join Date: May 2006
Posts: 144
|
I just had a final echo after my last Herceptin. Don't have any others scheduled as part of my followup.
- Anna
__________________
- Anna
Stage I - DX 9/2005 ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis - start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
|
|
|
|
|
03-02-2007, 11:59 AM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
|
I did not have another MUGA after my last herceptin...my onc. felt it unnecessary as all the MUGAs during treatment were good.
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
|
|
|
|
|
03-02-2007, 03:40 PM
|
#4
|
|
Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
|
I had Herceptin for 9 months and stopped due to heart issues. Muga was 54 when we stopped. Came back six weeks later for another Muga. It was 55. Doctor was glad it didn't go down, and we agreed I was finished with Herc.
Woman in my Wellness Community Support Group finished 12 months Herceptin in Sept. 2006. Muga was 48. Five months later (Feb. 2007) she felt she wasn't getting energy back and got worried. Insisted on a Muga. It was 57. I was happy to hear that. I don't know if I'll ever go back up to 70, but I'd love to get to 60.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
|
|
|
|
|
03-08-2007, 06:30 AM
|
#5
|
|
Junior Member
Join Date: Mar 2007
Location: South East, UK
Posts: 1
|
I had Muga after getting breathless following 9 herceptins. Muga was 45 so stopped Herceptin and put on Ramipril. Will have repeat Muga every 3 mths until cardiologist happy.
|
|
|
|
|
03-08-2007, 08:22 AM
|
#6
|
|
Senior Member
Join Date: Jan 2007
Posts: 144
|
Can someone tell me what is Muga? I had an echo before starting Herceptin 9 tx ago. My heart seems to race at times. Has anyone else experienced this?
|
|
|
|
|
03-08-2007, 08:50 AM
|
#7
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Emelie,
Both the MUGA and echocardiogram are tests to check heart function. A MUGA uses a dye whereas the eceho doesn't. My oncologist prefers the echo and I think it's just a doctor's preference. It is very important that you have it done every 3 months as Herceptin can cause your LVEF to drop. If your LVEF drops to 50% or lower Herceptin is stopped until LVEF comes back up.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
03-08-2007, 09:01 AM
|
#8
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
I've had both MUGA's and Echo's to check LVEF function, and both are quite accurate methods, but I personally prefer the Echo as it's non-invasive. The MUGA involves an injection of a radio-active dye, and for the Echo the tech applies some gel to the chest and then moves the sonagram device around to get the picture of the heart.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
|
|
|
|
|
03-08-2007, 05:48 PM
|
#9
|
|
Senior Member
Join Date: Mar 2006
Location: (Hill Country) Texas
Posts: 72
|
I didn't have a Muga after Herceptin even though mine dropped during Herceptin enough to stop Herceptin for awhile. My Muga improved some and we were able to restart Herceptin at a lower dose. I am having some issues that we are presently checking our concerning my heart. I still have swelling in ankles and lower legs and my shortness of breath during any exersion isn't getting better. I exercise regularly so if it were from lack of exercise this would improve with time. I have been off chemo since 11/05 and finished Herceptin 8/06. My onc. is having be evaluated by a cardiologist.
__________________
Jackie
Stage II, Grade 2, DX 4-05
EP +, HER2 +++,
1 node+, 1.6cm
46 yrs. old at time of dx.
Completed Chemo 11-05
Completed 1 yr. Herceptin 8-06
|
|
|
|
|
03-08-2007, 09:52 PM
|
#10
|
|
Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
|
I prefer echo to MUGA as well. Emelie, I have had racing heartbeats and they attribute that to panic attacks.( Can be treated with meds or other techniques.) Could be other things, ie. anemia as well. Most get one test or the other every 3 months during Herceptin. So mention your symptoms next visit.
BB
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 01:13 AM.
|
Linear Mode
