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Old 01-24-2007, 12:57 PM   #1
skeetur
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Re-excision lumpectomy over - now I wait... again
Had my repeat lumpectomy (re-excision) yesterday afternoon. Didn't get clear surgical margins with the first lumpectomy. I'm growing really tired of the "waiting" game. I'm sure that most of you can sympathize.

I didn't have a long wait for the biopsy results initially. Biopsies were Friday, results Monday. Then it was a 3 week wait for first lumpectomy. Then a week wait to get pathology back at post-op appointment. Then another 3 week wait for this re-excision lumpectomy and now another 1+ week wait for pathology.

These have been the longest 2 months of my life...

Skeetur
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12/01/2006 Initial Dx via stereotactic biopsy - DCIS, grade 3
12/27/2006 Lumpectomy w/ SNB: 2 foci of IDC (largest .3 cm, Grade 2, Notthingham score 6) amid large area of DCIS: No clear margins on the DCIS; re-excision recommended
ER+(55%)/PR+(60+)/HER2+ (2.8+ via IHC?)
01/23/2007 Re-excision Lumpectomy: No clear margins on the DCIS; mastectomy recommended
03/02/2007 Bilateral mastectomy w/ expander implant insertion
03/19/2007 Emergency surgery to fix broken blood vessel in left breast
03/30/2007 Met w/ oncologist; oncologist checking on HER2 status with pathologist and doing some consulting on my case - no treatments for now!
05/02/2007 Next appointment w/ oncologist
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Old 01-24-2007, 02:18 PM   #2
Sheila
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Skeetur

Keep your chin up, we are all praying for a good report...waiting has got to be the hardest part of all of this...waiting and fear of the unknown....take each day with positive thoughts, do something special and spontaneous just for you.....hoping you get your results early and they are Great News!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 01-25-2007, 06:32 AM   #3
mts
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Been there - done that!

I almost chewed my nails down to the second knuckle during the time after my 1st lumpectomy and the 2nd lumpectomy. Try to focus on learning all you can about your type of cancer so you have the best plan of attack.
Take care of things around the house, work and family so you won't feel so overwhelmed when the chemo begins.

Hang in there!

Maria (MTS)
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Old 01-25-2007, 10:30 AM   #4
rinaina
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I will be praying for you. The wait is always the worst. Keep very busy and keep your mind especially busy. Good luck.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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Old 01-25-2007, 06:36 PM   #5
Becky
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Dear Skeetur


I called my oncologist when I had my second surgery for clear margins. I just asked him if the margins weren't clear and I had to get a masectomy, how long did I have to wait for chemo (or could I take some chemo and get a masectomy and then finish chemo). When he called back to answer my question (3 days after the second surgery) he said I had clean margins. He (pre) checked prior to calling me and the results were in. So... is there someone you can call. They end up knowing far earlier than you think.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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