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12-15-2006, 12:36 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Update On Carol H from Dundee!
Hello everyone
I visited Carol in hospital and she wants me to thank everyone who replied with good wishes and prayers for her.
She has just learned the brain tumour is operable and will be undergoing surgery next Tuseday.
Although a very scary time she's being very brave but missing her children and freedom and going a little stir crazy as the tumour is preventing her reading and doing her beloved crossword puzzles (Dizzy spells and can't focus) so she's
pretty bored with too much time to dwell on things.
At this stage thats all we know but will update more at Carol's request and thank you all again and I just pray all goes well Tuesday for her.
Carol is only 38 and has two young children and her husband cannot be with her due to work commitments but will probably get compassionate leave to travel from Scotland to be with her Tuesday.
Good wishes to all.
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-15-2006, 12:55 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Tricia...
thank you for some MUCH needed good news. Now lets pray that the good news continues for her and for others. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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12-15-2006, 06:17 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Thank you Tricia for the update. Here's hoping that Carol's surgery goes well and that she'll soon be back with her family. I'll keep her in my prayers
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-15-2006, 11:21 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Tricia, thanks for the update. Will continue to send prayers for successful treatment for Carol and hope that she will be back home with her family soon.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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12-16-2006, 02:31 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Thanks Tricia. We are hoping for the best result after surgery. I see her with her children and happy, I know in my heart the surgery will be a success!
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12-16-2006, 05:16 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Thank you ladies!
Surgery has been moved to monday as Carol has very bad headaches and dizzy spells so you're good wishes are so appreciated.
She had a visit from her children today which was wonderful for her but upsetting also so here's to Monday and will update you all later in the wek.
Thanks for all your replies!
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-16-2006, 10:39 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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To Monday. Best of luck. BB
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12-17-2006, 01:48 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
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all the best for Monday and everything else
Christine
__________________
Christine
DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva
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12-17-2006, 09:17 AM
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#9
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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so glad
to hear that the tumor is operable. I'm sending Carol a lot of love (I'm 39 with 2 young ones and stage IV-so I get it!). Thank you for keeping us updated, especially since, if I rmember right, you are having some challenges too. How are you Tricia?
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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12-17-2006, 12:20 PM
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#10
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Hi Joy and thank you for your good wishes and of course thanks to everyone else too as I know Carol will gain strength as she recover's from her op knowing she has so many friends willing her well again.
Happy to report I'm doing fine so far although I did have a few problems and a bit of a scare two weeks ago with suspicion of lung mets but thankfully it seems clear and my onc says no evidence of that.
It seems my problems are related to years of smoking so armed with my patches I'm ready to finally win this particular battle after Christmas.(Finger's crossed)
Joy I know Carol will enjoy swapping stories with you when she gets back as you both appear to have a lot in common .
Tomorrow's the big day so will update as soon as I have any news.
Wishing good health and blessings to all our sister's
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-17-2006, 06:18 PM
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#11
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I am praying for a successful surgery. I hope all goes well. Please keep us informed.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-17-2006, 07:46 PM
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#12
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I'm sending good vibes so that Carol's surgery will go smoothly. Tricia, I'm glad that you do not have mets to the lungs. You are and have been a great support to Carol. Prayers coming your way for both Carol and you.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-23-2006, 01:51 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Further update-
Carol was sitting up for the first time since her op today and eating ice cream!
The bad news is that the surgeon could only remove about 40% of the tumour without leaving her with brain damage so at this stage we're hoping and praying again the chemo/rads will get the remainder.
Her bone mets have also begun to give more trouble so we're just waiting to see if her onc will leave her on herceptin as it may have stopped working so well having done wonder's containing the disease for 3 years.
She seemed a little down to me,understandably and is miserable at having to remain in hospital over Christmas and not be there for her children.
I keep reminding her to think ahead of her new house and life just waiting for her which is worth giving up one Christmas if this is all sucessful.
Her hubby surprised her by arriving the night before the op unexpectedly though which she was really pleased with.
The onc has mentioned Temodar (sp?) for chemo but nothing definate at this point.
Thanks again to you all for the support and will post more news as I get it.
I wish everyone a happy and peaceful Christmas.
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-23-2006, 02:07 PM
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#14
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Senior Member
Join Date: Oct 2005
Posts: 215
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update on Carol H
I am so happy her surgery is over and hopefully she will recover soon. She is a fellow Scot and I just know she has the gumption to get thru this. My best wishes to her for a Happy and Healthier new year. Maybe she can be home to celebrate Hogmany.
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12-23-2006, 02:18 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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I wish with all my heart that she can recover fast and become healthy again. I can see her next year at Xmas sitting with her children and family and staying in hospital for Xmas is only a far memory.
Big hug to Carol,
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12-24-2006, 02:24 PM
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#16
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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My hope is that Carol will recover quickly and the chemo will eradicate the rest of the nasty tumor so she will be good as new in no time. Blessings and prayers to Carol
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-24-2006, 02:37 PM
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#17
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Zometa for her bones
Hi Tricia and Carol -
I am sure they would have Zometa that Carol could take for her bones. That can be very effective. It is a short 15 minute infusion and could make a real difference.
For her leftover brain tumor met, they might think about doing the OMAYA (sp?) reservoir where they are able to put the chemo directly into the tumor site. This is often done for people with brain primary tumors.
Sounds like she may not be having the whole brain radiation, which could weaken the blood brain barrier and allow Herceptin and other chemo in. I think Patty Z has posted on Xeloda for brain mets as well.
Best wishes of the Christmas season to you both.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-26-2006, 03:04 AM
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#18
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Thank you Steph-
Carol has been on Zometa with herceptin for her bone mets the past few years so they will probably continue with that.
Her onc had talked of injecting the chemo directly to the tumour so I'd say you're bang on about that.
We're not sure yet about WBR as this was discussed before the op so she's waiting now to see him after Christmas to get a treatment plan.
I'll post any news as I get it but truely want to thank you all for info and support at this time.
You're all absolute Angels and I wish health and happiness to everyone!
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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