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Old 08-10-2006, 01:16 AM   #1
jhandley
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Down in the dumps

Hi all
I havent posted in a while...am NED at present but find I am a bit lonely at times dealing with all this. My daughter has just broken her arm and I am getting over a bout of pneumonia. Plus we were spending a term close to the snow when it turned out to be the worst season on record. I am on herceptin 3 weekly after 1 spot on the liver resolved quickly in Nov but hate the waiting and the worrying. Its very hard to keep cheerful all the time.
Single mum
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Old 08-10-2006, 02:14 AM   #2
RhondaH
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Smile I AM sorry to hear of your run of HORRIBLE luck, but...

hope good things are coming your way soon and that things will continue to improve. Take care and God bless.

Rhonda
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Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 08-10-2006, 02:49 AM   #3
chrislmelb
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Sorry to hear things are a bit grim. Spring will be here soon which will make us all feel a little better. The snow season has been shocking from what i can see. Where did you stay? My friend's father went to Mooloolaba for a nice beach holiday and ended up with pnemonia too. Must be the Vic weather.
I hope things look brighter soon for you and just think of all that paddling you'll be able to do. And all the best for your daughter too.
Christine
PS Where are you getting Herceptin?
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Old 08-10-2006, 03:11 AM   #4
R.B.
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Have you looked at omega threes and sixes. There are lots of posts on this site.

There is a significant amonut of data that suggests that low omega three can contribute to depression.

We all have our grey days.

I hope the sun comes out soon.


RB
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Old 08-10-2006, 10:13 PM   #5
chrisy
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Oh, yes indeed it is hard to stay cheerful all the time - and nobody should expect you to. I work very hard to stay positive and "hold it together", but sometimes I just get down and really fragile. This is a nasty disease and it is, as my oncologist acknowledged to me yesterday, "like sitting on a volcano you're afraid is gonna blow". This after slapping me around (in a nice way) for getting myself worked up over NOTHING...I guess it's just the nature of dealing with this beast. But we do find our way to keep moving forward.
I hope you're feeling better soon!
Hugs,
Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 08-11-2006, 11:17 PM   #6
jhandley
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Smile Up again

Hi all
Thankyou so much for your replies. R.B. I am back on my fish and flaxseed oils and I know that helps the mood. Getting off antibiotics was also a plus.
Thanks again.
jackie
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Old 08-12-2006, 12:24 PM   #7
sarah
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Dear Jackie,
We all feel down sometimes, it's hard not to but try to see the positive things in life and just the silly physical act of smiling - a forced smile - something about hte action makes something in your body chemistry change and you'll start to feel better. I find books a life saver - they really take you away and also funny films.
I hope you'll feel better and more positive and we all understand how hard it is stometimes.
I hope you refind your groove soon
all the best
sarah
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