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Old 06-07-2006, 11:41 PM   #1
Chelee
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Question Bone biopsy for possible hip mets?

I had a PET/CT scan. This is the second time my one hip lite up. But prior to my bc diagnosis I was seeing a Neurologist for back problems and my hips hurt. The Neuro at that time said I have bruscitis. (sp)

But that was BEFORE I found the bc. So now I am concerned that since the hip lite up...maybe its not brucitis after all.

But I asked my oncologist how do we find out if the cancer spread to the hip? She just said, "Do you want a bone biopsy"! Is that really how they find out if you have bone mets? I need to know...this is worrying me and she doesn't seem concerned...but I am. The hip hurts really bad...plus its been getting a numb feeling in it for a long while now. I hope its not...but I rather have peace of mind. How do they find out? Does anyone know. Help please.

Chelee
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StageIIIA, Her2/Neu 3+++, Er & Pr positive, 5 of 16 positive nodes, Richardson scale 9 of 9.

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Old 06-08-2006, 12:20 AM   #2
Lani
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hope this helps--orthopaedic consultation recommended

Work-up of hip pain for mets can include MRI and bone scan as well as PET/CT.PET/CTs which light up in the hip can reflect a lot of things besides mets. Often none of these need to be done if an expert orthopaedic surgeon consultation is obtained.

A good physical examination by an orthopaedic surgeon (not a rhematologist, physical medicine specialist or "chiropractic orthopaedist") could help determine if the pain is coming from your hip, is referred pain from your back, or is outside your hip (trochanteric bursitis).

Bursitis is treated with antiinflammatories or a local steroid injection when truly bothersome. A diagnostic injection with only local anaesthetic into the bursa can also be done by an orthopaedic surgeon to determine if that makes your pain go away--then you know it is not mets.

If you had a chemo regimen that included prednisone or were on steroid for some other condition for many years (eg asthma, lupus, etc) you may be at risk for avascular necrosis of the hip (loss of blood supply to the hip with collapse of the bone with time and early arthritis). This would show up on an MRI.

A bone biopsy is usually not needed and is usually avoided as it weakens your bone for three months or more, making the hip prone to fracture even if it turns out the bone of the hip was normal. Usually six to twelve weeks
on crutches is recommended after such a biopsy is taken.

Not to worry you--sounds like you are already doing enough of that.

Statistically, bursitis is common. Back pain referring to the hip is common.
Avascular necrosis is much less common. Mets are much less common than bursitis or referred back pain.


A good orthopaedic surgeon will also ask you questions which help determine the likelihood what you have is mets and therefore whether any tests need be ordered. If your hip pain gets better and worse it is VERY unlikely to be mets.

Again, a good orthopaedic surgeon should be able to help you sort this out.

Orthopaedic surgery is one of few fields in medicine in which there is not a medical and a surgical division (eg. nephrology and urology, gastroenterology and general surgery (GI), neurology and neurosurgery) so he/she ought to be able to help you out without your supposing surgery will always be recommended--most orthopaedic surgeons operate on the vast minority of their patients. They are generally much better than their non-surgical colleagues at injecting joints and bursae, diagnosing the musculoskeletal system, ordering the right CTs and MRIs and judging which things NEED surgery.

Information is the best defense against fear and worry!

Good luck,
Lani

PS where are you in California?
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Old 06-08-2006, 01:48 PM   #3
Chelee
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Thanks Lani for the information. I really apprciate it so much! I wonder why my oncologist didn't mention a bone scan or MRI of my hip? O'well.

Since I have a congential back problem...I have seen orthopedic doctors my entire life....so I will find a good Orthorpedic doctor/surgeon and have this checked out. I just can't rest till I have an answer...its stressful not knowing. I need peace of mind.

One thing you said that makes me feel a little less concerned for the moment...is if the pain comes and goes it usually isn't bone cancer...more so the brusitis. That sounds more like me. It is painful at times...and other times not so bad. But when I was seeing a Neurologist...he pushed on my hip bone where the bursa is and I SCREAMED. Darn it hurt. He was convinced it was bursitis due to my congential back problems. (But again...that was BEFORE I knew I had her2 bc.)

After hearing about the problems a bone biospy can cause...I would NEVER agree to that. I can't imagine why my oncologist would even suggest it since she knows my other problems relating to my back. Just what I need is a weakened hip bone and to be stuck on crutches six to twelve weeks. (No way!) I am not even through my chemo treatment...I can't afford to be doing things like that. It would seem she should of ordered a MRI and never suggested a bone biospy?

I am going to try to relax some. My hip does hurt quite a bit and has a long time. But the pain is really bad at times...and does decrease at others. I have noticed it causing me alot more pain lately...but I am sure it is being aggravated by the chemo/bone marrow count has been low too.

Thanks again Lani...I will look into a Orthopedic doc.

Chelee
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Old 06-08-2006, 02:10 PM   #4
Julie2
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thanks Lani!

I am very moved by your reply(good analysis and suggestions). You are very much appreciated and thanks for being with us.

Julie
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Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 06-08-2006, 06:22 PM   #5
Cathya
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I agree Julie....thank you so much Lani. I don't know how you got to be so smart but thank goodness you are....lol. You really are a blessing to us all on this site. Thank you

Cathy
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Old 06-08-2006, 07:19 PM   #6
Chelee
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Hi Lani, I had replied already to you......but you asked WHERE in CA was I? I forgot to answer that. I am in Southern, CA if that helps. Thanks AGAIN for the time and trouble you went to to help me out. In fact...thanks for all the GREAT information you are always posting. I always look forward to all of your posts. You are one smart cookie. I am so glad we all have you here.


Chelee...
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Old 06-09-2006, 11:54 AM   #7
Patty H
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I just had a pet scan Wed. and my hip lit up, so we did a MIR on Thur. and it confirmed what the pet said. This was all through my radiation Dr. so next week I'm back to the oncologist to see what we do next. So I think a MIR would be a good call. Patty H
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