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06-07-2006, 09:50 PM
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#1
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Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
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I'm back
Sorry, My computer was down for 6 days with a virus.
I'm still here and intend to stay.
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
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06-07-2006, 11:58 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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Al...So glad you're back!!! I know that I speak for everyone here when I say how lucky we are to have you here!! Your insight and determination to see this beast vanquished is a HUGE comfort...I know that Linda's illness is what fueled your fire in the first place...but we are so blessed to have your fire continue on our behalf as well as your daughters'!!!
A heartfelt thank you !!
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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06-08-2006, 01:14 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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I agree with Tammy. I am awed by your dedication, inspired by your generosity and grateful for your information. Like everyone on this site, I am also greatly saddened by your loss.
Here's hoping there's a cure soon and that your daughters never have to suffer this wicked disease.
sarah
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06-08-2006, 01:49 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Al...
so apparently you've been "nursing" it back to health (virus, get it?!!) Oh well, my SLIGHT attempt at humor at 4:47 in the morning. Glad your back.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-08-2006, 02:31 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Al
Thank goodness you are back. I always like to read your posts.
Linda
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06-08-2006, 04:50 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
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I'm glad your back too! Your compassion and knowledge are truly appreciated! God bless Al! - kim
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06-08-2006, 06:40 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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I'm glad you're back too, Al, and planning to stay! Your insights and information have been invaluable to all of us. You mentioned that you might be in the Phoenix area this fall---I am looking forward to at least a phone call from you then. Bless you for your dedication to Linda and to this site! Tricia
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06-08-2006, 09:08 AM
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#8
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Al, you continue to give us the staight scoop and we value your contribution to this site more than words can say...glad you're back, and glad your computer is "healthy" again!
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06-09-2006, 07:07 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 639
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Welcome back Al! You had us worried for a few days; I am glad to hear it was just a sick computer!
Love Kim from CT
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06-09-2006, 11:04 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Central Valley, CA
Posts: 73
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Welcome back! Your wisdom is very much appreciated on this board.
Helen
__________________
- Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
- Carbo/Taxotere/ Herceptin combo for 6 months
- Herceptin/ Navelbine
- Recurrence on the same liver spot in 7/07
- Liver resection 9/07
- Tykerb/xeloda 10/22/07
- NED since 9/07 and continued Tykerb/xeloda
- PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
- PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
- Onc considering Taxol/avastin
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