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Old 04-21-2006, 07:23 PM   #1
LOPSIDED
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Breast Cancer Count??????????

I'M STILL IN THE LEARNING PROCESS OF THIS JOURNEY. I WAS TALKING TO ANOTHER WOMAN WITH BREAST CANCER WHO ALSO GOES TO MY DOCTOR, AND SHE SAID I SHOULD BE KEEPING UP WITH MY BREAST CANCER COUNT. SHE SAID THE NUMBERS LET YOU KNOW IF THE CELLS ARE ACTIVE OR DORMANT. SHE TOLD ME THE CODE WAS CA27-29. I WAS DIAGNOSED IN SEPT 2005 AND I DON'T RECALL MY DOCTOR TELLING ME ABOUT THIS----SOMETIMES I FORGET THINGS OR MAY HAVE BEEN TRYING TO KEEP MY COMPOSURE WHILE HE TALKED ABOUT TREATMENTS WITH ME. THEY ALWAYS CHECKED MY COUNTS (RED & WHITE), MY PLATLETS & HEMOGLOBIN. HER CANCER HAS SPREAD TO THE BONE AND AS FAR AS I KNOW MINE HAS NOT SPREAD. I DID HAVE 8 POS. NODES OUT OF 10. DOES ANYONE KNOW ABOUT THIS BREAST CANCER COUNT? THANKS FOR ANY INFO. SHEILA
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Old 04-21-2006, 07:52 PM   #2
Lisa
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The count or counts are blood tests that supposedly determine how much cancer is in you blood. For some of us, it is a great indicator. For others the numbers are never accurate. I have my blood drawn every week when I go in for Herceptin. Currently, I feel pretty good, but my 2 counts are both way out of site. I suppose it's because we know I do still have mets in my liver and back.

There are two site ranges they look at. But I forget what they are at the moment. I'm sure someone else who's not feeling lazy well share much more of what they know.

Love and light,

Lisa
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Old 04-22-2006, 12:27 AM   #3
chrislmelb
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Sheila, i think you will find that as an early stager you will not have your counts monitored as regularly as the metastatic women.

Christine
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Old 04-22-2006, 04:32 AM   #4
Sheila
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Sheila
I agree with Chris and Lisa...there are 2 tests they use, one is the CA 27-29 and the other is the CA15-3? I think...anyway, like Lisa said, they are not reliable for everyone, and you probably wont have one ordered while you are still in treatment. For some they are a very accurate test, others can have perfect results and have out of control mets...I would say after your treatments are done, you will probably have routine CT, Bone, PET scans and don't forget the MRI of the brain.....very important for us!!!
__________________
"Be kinder than necessary, for everyone you meet
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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