First scan TDM1

[michka]

Hello Everyone.
I had my first scan after 2 cycles of TDM1. The 5 or 6 tumors in the lungs shrunk one or two mm and one 4mm. The largest tumor is now 11mm. The one tumor in the liver shrunk 3mm and is now 14mm. The 3 nodes in my abdomen and in my thorax shrunk between 3 and 5mm. So the good news is that there is regression of all tumors. I must admit however I was hoping for more. I know, I know, first I am lucky to be in the trial, then for some, TDM1 does not work at all. But you know how we are! We want to get rid of these stupid mets! I think I will really know in 6 weeks, with my next scan, if the tumors continue to shrink or if it just stops there.
The 2 first infusions were a little difficult although nothing to do with hard chemos of course!. I had nausea the first week of the cycle but the worse comes on the second week. I had intense fatigue and pain in my chest. It did not allow me to stay up more than a couple of days. The doctors said they did not know what it was since my heart is fine. It's hard to believe. When I say "fatigue" it is because I have no other word. In fact it was like missing red blood cells (it is not the case) plus having run so much that your thorax hurts with pain. Did anybody have this? Does someone have an explanation?
and it is not stress...
I had my third infusion last Wednesday. It is much much easier than the last time because I have less nausea so I hope the body is adjusting and that I will not have pain on week 2.
I do hope TDM1 will be released soon for everybody. And Pertuzumab also!
Love to all. Michka