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Old 08-14-2012, 06:57 AM   #1
twosenuf99
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Join Date: May 2011
Location: Gloucester City, NJ
Posts: 73
Update and questions
Hi everyone just wanted to tell everyone on August 3 I had my last surgery for the exchange of expanders to implants. Surgery was easy as recovery has been except I was in the hospital last week, my bp was 86/58 and I passed out several timesHospital was torture! They ended up sticking me 25 times for an IV before they finally put a picc line in to do a ct scan looking for cancer on my adrenal gland. All tests were negative and they sent me home with no resolution. So far I am still light headed with low bp but have not passed out. I have 3 herceptin treatments left and then will be done everything except nipple recon but thinking I will go with bamm-bamm and pebbles tattoos instead.

This coming weekend we are moving from nj to Roanoke Virginia area and need to find a new onc to follow me. Does anyone have any recommendations?

Thanks for the continued support and advice. Could not have survived the past year and a half without my cyber-friends..

Tracy
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Baseline Mammogram November 2010, found 2 suspicious calcifications (right side).
Second Mammogram April 2011, found 2 masses in the right breast, 1 in the lymph node and 1 in the left breast.
3 Biopsies May 11, 2011
Diagnosed right Invasive Ductal Breast Cancer which spread to my lymph node 5-13-2011.
Between Stage 2 and 3 with tumors grade III. ER/PR- but Her2neu+++
PET Scan clear
Breast MRI showed 2 masses in left, 5 in the right and 2 in the lymph node.
Biopsy of left mass benign
Joined clinical trial which required second biopsy of one of the right masses
Port placed May 27, 2011
Began Chemo (Taxol, Herceptin and Tykerb) on June 1, 2011 - September 12, 2011
Bi-lateral Mastectomy with reconstruction (expanders) October 3, 2011
FEC 12 weeks
Radiation 6 weeks
Herceptin 8 months finish September 2012
Exchange surgery August 3, 2012
Been NED since October 2011
Lymphedema right arm since Nov 2013
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Old 08-14-2012, 07:15 AM   #2
snolan
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Join Date: May 2011
Location: El Paso ,Tx
Posts: 436
Re: Update and questions
Congrats on finishing your surgery. I just finished my nipple reconstruction and tatoos, very easy compared to all the other stuff we had to do. Hope the BP issue clears soon, hopefully just a bad reaction to anesthesia.
Suzanne
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 08-14-2012, 11:15 AM   #3
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Update and questions
Tracy!
Congrats on being "done" with recon!! I personally LOVE the Pebbles and Bam-Bam tattoos!! Original, creative, fun!

I hope you love your new home in Roanoke! Are the kids excited? They start 7th grade this fall? So great that they have each other to lean on while they get used to the new routine and school.

I hope your blood pressure gets back to normal soon.
Be well!
Denise
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1/11-needle biopsy
 2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
 3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
 4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
 8/26/11 finished Taxol!!!
 10/7/11 mastectomy/DIEP recon
 11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
 1/12 Low EF/Herceptin "Holiday" :(
 2/12 EF up - Back on Herceptin, heart meds
 4/2/1212 surgery to repair separated incision from DIEP recon
 6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
 7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
 “ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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