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02-21-2013, 07:40 AM
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#1
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Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
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Radiation pain
Okay, I have now has 25 imrt radiation. Treatments. Yesterday after 25th they measured different angles while i was laying on the linear accelerator machine. Now, 5 more boosts......however, I couldn't sleep last night because my skins is burning, feels like ripping, and throw in an occasional jabbing pain!
I call the doctor office and say my problem and she says see the Dr. Before treatment we might need to take a break. She said in beginning I might need lidocaine patches for pain down the road....well, I need them and I don't want a break I want to be done with this radiation process!
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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02-22-2013, 02:50 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Radiation pain
Hi,
The rad Onc should be able to give you some creams to help and mine also gave me a gel pad which I put in the fridge to cool and it felt wonderful on my skin. I also used 100% natural aloe vera too, hang in there as you're almost done but do ask for something to help ease the burning and pain.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-22-2013, 10:24 PM
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#3
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Senior Member
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
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Re: Radiation pain
Hi there,
There are creams out there that are supposed to really work! You're getting done and I hope you can find something that works! Have a great weekend! I'll be in touch ....
-Julie
__________________
Julie
Live in Orange County, CA
Diagnosed with DCIS Oct. 2012
Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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02-23-2013, 04:33 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Re: Radiation pain
Ask the pharmacy about a cream. sometimes the first creams they give you aren't good enough and you have to buy one that's creamier - you'll have to wear a t-shirt or something to avoid getting it on everything. and take a paracetemol, pain pill for the pain. just remember to wash the cream off before the radiation treatment - your skin has to be cream free for that.
hope it improves
take care
sarah
__________________
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02-24-2013, 08:02 AM
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#5
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Senior Member
Join Date: Dec 2012
Location: Attica, IN
Posts: 371
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Re: Radiation pain
My skin is starting to just peel off...it looks like I have been scorched by fire. But 3 more to go, and I can heal. She gave me lidocaine cream in addition to using aquaphor.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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02-24-2013, 09:14 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: Radiation pain
Another thing is now you will just be getting very targeted boosts to the tumor site. It will not include your entire breast so that part is done and that part will continue to heal. You will have a better outcome if you just continue with these 5 extra boosts with no break. Your radiation oncologist can give you a prescription for Silverdene (I think that's what its called) and that can give you further help.
I burned bad - even before the boosts came and was still getting whole breast radiation. When I showered, I used unscented Dove. I patted dry and then I laid belly down on the bed with my breasts hanging over the edge of the bed. This is so they thoroughly dried. Then I put Biotene cream all over. I also used Fruit of the Earth Aloe Vera gel. For me, the biotene worked better. Making sure there is no dampness is also key.
You can do this - the boosts are nothing and you will have alot of healing on the other areas since they won't be getting radiation from now on.
Huge (but gentle) hugs to you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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