Whole Brain Radiation ~ the process
Hello friends - well here I am staying in accommodation with my hubby and our babies - waiting for my WBR to start on Tuesday.
I wanted somewhere to record some of the process - and I thought here might be a good place - with people who understand what Im going through and could give me some helpful feedback - if yous dont mind that is:-))
I'll have to go back and check my scan results from last week - but apparently there are 6 mets (most under 1cm) - one 1.1cm. I will have to go back and check those notes - just dont have them on me at the moment.
I wanted to post though - as I got off to such a bad start with the nursing staff!! I couldn't believe it - I think going from Palliative Care to inpatient at Tertiary level modern hospital was such a shock to my system - I really had to say - I'll come back as an outpatient. It really freaked me out!!
Anyways - I'll post more later when I get a chance... very tired.... and crabby!! LOL! and need to rest badly. Say a few prayers for me folks - I think Im gonna need them!
Blessings all
Hermiracles (Marilyn)
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2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
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