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12-13-2006, 01:00 PM
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#1
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Stomach Trouble
Did anyone come out of treatment with stomach trouble? I used to joke about my cast iron stomach. I finished 3 A/C, 4 Taxol and 36 weeks of Herceptin. Had to stop Herceptin due to heart issues. I had uncomfortable acid reflux during taxol and Herceptin, but an occasional antacid helped. Last does of Herceptin was six weeks ago and this weekend I got acid reflux so bad that I vomited three days in a row. My oncologist doesn't think this has to do with herceptin and suggested I see my family doctor if I don't improve. Does Herceptin have withdrawal symptoms. My stomach feels like it's been scraped with a brillo pad. Did anyone get this? Do you think the chemo & herceptin left our stomach linings more delicate. MJO
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-13-2006, 04:55 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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MJo,
I still occassionaly have stomach problems -- feel nauseated at times and sometimes even throw up. I have phenegren that I take on those occasions. It doesn't happen often but enough that I need the prescription on hand. I don't know if it's resiudal side effect of chemo or if it's the Herceptin. At any rate I sympathize with you. Ask your oncologist is he/she can't give you a prescription for the phenegren to keep on hand.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-13-2006, 11:27 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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I had stomach issues during treatment. They were nasty. Bad burning in my throat, major reflux, you name it. I know the taxotere did me in. I was given Protonix for it and that solved the problem right away. That gave me back a case iron stomach as you said.
But about a month after I finished chemo...my stomach went back to normal and I have not had any problems with it. (Knock wood.) I've never heard of herceptin withdrawal...but that is a good question? Anything is possible, we all can react differently. It will be interesting to see if others have had any problems after stopping herceptin? But until then...see your primary or onc and ask for some Protonix, nexium, or something along that line.
I sure hope things improve soon for you.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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12-14-2006, 01:30 AM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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HI I had a lot of stomach problems too and after chemo had an endoscopy done to rule out cancer or ulcer's.
Thankfully it was neither but they did say I had developed a hiatus hernia and a year after chemo I still need to take a nexium before breakfast and have never regained my apettite.
I think this is very common after chemo and I hope your's settles soon.
I finished herceptin a month ago but have'nt noticed any withdrawl effect yet but good question.
Tricia
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-14-2006, 11:27 AM
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#5
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Many thanks for your answers and suggestions. It calms my stomach acid to know I am not alone. MJO
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-14-2006, 12:14 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Testing time?
MJo -
I just finished posting what is happening with Lisa - and although I am not your doc, or even the smartest nut in the bowl - I would feel better knowing these are side effects and not symptoms. Read "The Sccop" post and maybe you'll agree. If so, ask for a scope to make sure the tummy is fine! Of course - with my emotional state i could be over-reacting...
Love and Light
mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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