Hi ladies,
Lots of you know how I agonized over leaving my job. My last day was Wednesday and it was super sad. I have been trying to think of ways to occupy myself, and I came up with this idea - an internet talk show for breast cancer patients!
It is not a money making thing but I thought it would be a fun way to communicate via voice rather than just in forums. I am matching it to my blog, so the talk shows name is Breast Cancer? But Doctor...I Hate Pink.
We will discuss all things breast cancer.
http://www.blogtalkradio.com/butdoctorihatepink
You can like me on facebook for updates:
https://www.facebook.com/ButdoctorIhatepink
The first show is planned for July 2nd, at 2:00 pm CA time.
The first show will be focused on the newly diagnosed - what we went through when we were newly diagnosed, how confusing it all was, and any tips for those who are facing their first cancer diagnosis.
The next one, July 9th at 2:00 pm CA time will be to discuss all things chemo - tips and tricks for managing it, which ones are easy, which ones were difficult, and we'll throw a little herceptin talk in there too.
The third one, and maybe last if nobody listens or calls, will be July 16th and is focused on this of us with metastatic disease. How we are living our lives with active cancer, how we manage emotionally, and how the heck do you know you have mets anyway?
I hope this is something you all would find interesting. I know it'll give me something to do and look forward to, and it's a way maybe I can help others get in touch with cancer patients in a different way. A virtual support group where all are welcome!
If Tricia is still around, i sent her a PM that never got answered - your email address failed on me. I would LOVE to interview you for my 3rd show on mets - living so long with metastatic disease is a great hope and I want to highlight hope.
Thanks all!
FYI (My last scans show I'm still in no man's land. UCSF Doctor things I'm NED and what they see on the scans are normal changes post-ablation with some weird update on the PET that doesn't correlate with the concerning spot, and my Sacramento Oncologist thinks that spot is cancer and I'm still doing chemo. He was the one who said I was in "No Man's Land." He might let me off chem for a month anyway since "you can't be on it forever." And, I could still go back on it if cancer is definitive. I'm on Abraxane right now which has been quite easy.
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http://butdoctorihatepink.com
08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative
10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.
5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.
I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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