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Old 07-25-2013, 06:33 PM   #1
embur102
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Mosquitoes and Herceptin

Has anyone else become a mosquito magnet while on Herceptin? Mosquitoes have never been particularly attracted to me, but for some reason, this summer they are eating me alive!
I have resorted to using DEET (horrors!!) and staying indoors, and they still find me. I look like I have leprosy, lol
Any suggestions?
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Dx 4-12-2012
R unilat Mx 5-25-2012 (no reconstruction)
Stage 2B, Grade 3, Her2+++, Er + (15%), Pr -
4.2 cm, 2/14 nodes +
3 AC, 4 T/H
Zoladex 4 months
Oophorectomy Feb 2013
AI daily
Herceptin every 3 wks until Sept 2013
Gamma Knife June 2014, 2 cm brain met
Liver mets Oct 2014
Taxotere/herceptin/perjeta-CLEOPATRA trial Nov 2014-Mar 2015


"RISK BEING SEEN, IN ALL OF YOUR GLORY!" Jim Carrey
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Old 07-26-2013, 10:58 AM   #2
tricia keegan
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Re: Mosquitoes and Herceptin

Ouch no, I haven't heard this before and do hope they leave you alone soon, hope someone else can offer advice as we don't tend to get them much here at all.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 07-26-2013, 05:45 PM   #3
JennyB
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Re: Mosquitoes and Herceptin

Before BC I was always the mossie magnet then when pregnant they didn't come near me also through chemo was given a wide berth and alas sadly through herceptin and beyond back to normal but not increased no.
Sorry not much help
Jen
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Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
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Old 07-26-2013, 07:31 PM   #4
'lizbeth
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Re: Mosquitoes and Herceptin

Mmmmm . . . you are tasty!

You’re trying your best to enjoy an evening cookout, but a constant swarm of mosquitoes follows you from grill to poolside. The threat? A pierce to your skin, leaving behind an itchy red welt and possibly even a serious illness. As you swat madly at the pests, you notice that others seem completely unfazed. Could it be that mosquitoes prefer to bite some people over others?
The short answer is yes. Mosquitoes do exhibit blood-sucking preferences, say the experts. "One in 10 people are highly attractive to mosquitoes," reports Jerry Butler, PhD, professor emeritus at the University of Florida. But it's not dinner they're sucking out of you. Female mosquitoes -- males do not bite people -- need human blood to develop fertile eggs. And apparently, not just anyone's will do.

Who Mosquitoes Like Best

Although researchers have yet to pinpoint what mosquitoes consider an ideal hunk of human flesh, the hunt is on. "There's a tremendous amount of research being conducted on what compounds and odors people exude that might be attractive to mosquitoes," says Joe Conlon, PhD, technical advisor to the American Mosquito Control Association. With 400 different compounds to examine, it's an extremely laborious process. "Researchers are just beginning to scratch the surface," he says.
Scientists do know that genetics account for a whopping 85% of our susceptibility to mosquito bites. They've also identified certain elements of our body chemistry that, when found in excess on the skin's surface, make mosquitoes swarm closer.
"People with high concentrations of steroids or cholesterol on their skin surface attract mosquitoes," Butler tells WebMD. That doesn't necessarily mean that mosquitoes prey on people with higher overall levels of cholesterol, Butler explains. These people simply may be more efficient at processing cholesterol, the byproducts of which remain on the skin's surface.
Mosquitoes also target people who produce excess amounts of certain acids, such as uric acid, explains entomologist John Edman, PhD, spokesman for the Entomological Society of America. These substances can trigger mosquitoes' sense of smell, luring them to land on unsuspecting victims.
But the process of attraction begins long before the landing. Mosquitoes can smell their dinner from an impressive distance of up to 50 meters, explains Edman. This doesn't bode well for people who emit large quantities of carbon dioxide.
"Any type of carbon dioxide is attractive, even over a long distance," Conlon says. Larger people tend to give off more carbon dioxide, which is why mosquitoes typically prefer munching on adults to small children. Pregnant women are also at increased risk, as they produce a greater-than-normal amount of exhaled carbon dioxide. Movement and heat also attract mosquitoes.
So if you want to avoid an onslaught of mosquito bites at your next outdoor gathering, stake out a chaise lounge rather than a spot on the volleyball team. Here's why. As you run around the volleyball court, the mosquitoes sense your movement and head toward you. When you pant from exertion, the smell of carbon dioxide from your heavy breathing draws them closer. So does the lactic acid from your sweat glands. And then -- gotcha.
With a long track record -- mosquitoes have been around for 170 million years -- and more than 175 known species in the U.S., these shrewd summertime pests clearly aren't going to disappear any time soon. But you can minimize their impact.
Plenty of mosquito repellents line the shelves of drugstores and supermarkets each summer, but they're not all created equally.The majority of available mosquito repellents derive their effectiveness from chemicals. Protecting the public from mosquitoes since 1957, DEET continues to be the chemical of choice used in repellents. In repeated studies, it's been proven the most effective chemical repellent on the market. Repellents with 23.8% DEET (most formulas contain between 10% and 30%) protect wearers for about five hours, according to a study led by Mark Fradin, PhD, a researcher with Chapel Hill Dermatology.
Just how safe is it to coat yourself in DEET to keep from getting bitten by mosquitoes? "[DEET] has been in use for over 40 years and has a remarkable safety record. Only few hospitalizations have been reported, mainly due to gross overuse," Conlon tells WebMD. The American Academy of Pediatrics states that low concentrations of DEET (10% or less) are safe to use on infants over 2 months old.
DEET, though the most well-known, isn’t the only chemical used in mosquito repellents.
In 2005, the CDC began recommending alternatives to DEET for repelling mosquitoes. Picaridin, fairly new to the U.S., has been used worldwide since 1998. Marketed as Cutter Advanced, picaridin has proven to be as effective as DEET but is said to be more pleasant to use because it is odorless and contains a light, clean feel. Picaridin is safe for children older than 2 months.
The chemical IR3535, better known as Avon's Skin-So-Soft, also has been marketed as a mosquito repellent in the U.S. in recent years. To date, research shows it's much less effective than DEET.
Then there’s metofluthrin. This new chemical, approved by the EPA in 2006 as a mosquito repellent, “is selling like hotcakes,” Conlon tells WebMD. Sold as DeckMate Mosquito Repellent, it’s available in two forms. As a paper strip, you place it in outdoor areas like patios and decks. You can also wear it. As a personal repellent product, it comes in a small container with a replaceable cartridge. Clipped onto a belt or clothing, it relies on a battery-powered fan to release the mosquito repellent into the area, surrounding and protecting the wearer. It is not applied to the skin.
Alternatives to Chemical-based Mosquito Repellents

If you want to avoid chemical-based repellents altogether, a few promising alternatives do exist.
"Of the products we tested, the soybean oil-based repellent was able to protect from mosquito bites for about 1.5 hours," Fradin reports. He and fellow researchers found other oils -- citronella, cedar, peppermint, lemongrass, and geranium -- provide short-lived protection at best.
Oil of eucalyptus products, however, may offer longer-lasting protection, preliminary studies show. Endorsed by the CDC, oil of lemon eucalyptus is available under the Repel brand name and offers protection similar to low concentrations of DEET. Lemon eucalyptus is safe for children older than 3 years.
In the last few years, nonchemical repellents worn as skin patches and containing thiamine (vitamin B1) have arrived in some big-box stores under the name Don’t Bite Me! The science behind this repellent comes from a study done in the 1960s. It showed that thiamine (B1) produces a skin odor female mosquitoes don't like. But no other studies have confirmed thiamine's effectiveness as a mosquito repellent when worn on the skin. Chari Kauffmann, president of the company that sells skin patch called Don’t Bite Me!, says studies on the product are ongoing, though the company has no conclusions to report.
Hate to spray or slather yourself with any product, either chemical- or plant-based, but want to prevent mosquitoes from landing on you?
Mosquito traps, a relatively new product, may be the answer. They work by emitting substances that biting mosquitoes find attractive -- such as carbon dioxide, heat, moisture, and other mosquito-friendly byproducts. They attract, then trap or kill female mosquitoes. When placed strategically near breeding spots, "they have knocked [mosquito] populations down," Conlon tells WebMD.
One new fad in mosquito protection doubles as a fashion statement. It’s insect shield repellent apparel -- clothing infused with the chemical insecticide permethrin. Marketed as a must-have for outdoor enthusiasts, Conlon says the military has used this method for several years. “I wore them in the jungles of South Africa; I would recommend them to anyone going out into the woods,” he tells WebMD.
Take time to look at the big picture — in your yard, that is. It’s part of a process that Greg Baumann, senior scientist with the National Pest Management Association Inc., calls integrated pest management, and it involves identifying invasive pests in your surroundings and taking corrective actions against them. This means finding and eliminating standing water, which serves as an ideal breeding ground for mosquitoes. Clogged gutters, the crevices of plastic toys, garbage cans, rain barrels without screened covers, and bird baths are some of the biggest neighborhood breeding grounds, Baumann says.
How Risky Are Mosquito Bites?

A mosquito bite can mean much more than a few days of itching. For some people, they can cause severe allergic reactions. Plus, there are mosquito-transmitted illnesses. The West Nile virus made its first appearance in the U.S. in 1999. That year, New York confirmed 62 cases and seven deaths. By 2008, the number of cases had escalated substantially. In 2008 alone, the CDC reported 1,356 cases of West Nile throughout the U.S. and 44 deaths. In 2009 and 2010, outbreaks of dengue fever were reported in the U.S. Then there’s malaria, an oft-forgotten mosquito-transmitted disease. “We don’t think about it, but a million people worldwide die of malaria every year,” Baumann says.
Although malaria outbreaks in the U.S. are few and far between, the same can’t be said for West Nile, which Conlon says "is probably here to stay." And with it, the age-old, ever-adaptable mosquito.


http://www.webmd.com/allergies/featu...-magnet?page=3
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 07-27-2013, 07:08 AM   #5
embur102
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Re: Mosquitoes and Herceptin

Thank you, ladies!

Thanks to menopause, I am indeed, hot, sweaty, and moving around in agitation
__________________
Dx 4-12-2012
R unilat Mx 5-25-2012 (no reconstruction)
Stage 2B, Grade 3, Her2+++, Er + (15%), Pr -
4.2 cm, 2/14 nodes +
3 AC, 4 T/H
Zoladex 4 months
Oophorectomy Feb 2013
AI daily
Herceptin every 3 wks until Sept 2013
Gamma Knife June 2014, 2 cm brain met
Liver mets Oct 2014
Taxotere/herceptin/perjeta-CLEOPATRA trial Nov 2014-Mar 2015


"RISK BEING SEEN, IN ALL OF YOUR GLORY!" Jim Carrey
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Old 07-27-2013, 11:37 AM   #6
NEDenise
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Re: Mosquitoes and Herceptin

'lizbeth,
Thanks for that great article.
I learned more about mosquitoes in that one post than in the 48 years prior!
I'm one of those "very allergic" people ( my welts are usually the size of a quarter, raised, and hot) so I try not to be outside at dawn and dusk - the worst mosquito times of day. All I need is an edema flair up or a good case of some nasty bug-born virus to add to my list of ailments!

Stay bite-free my friends!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 07-27-2013, 02:48 PM   #7
Coux92
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Re: Mosquitoes and Herceptin

My son has always been a magnet, I have had some success with giving him B complex supplements
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3/11/13- normal mammo and US
4/30/13 Found pea sized lump while showering
5/10/13 core bx
5/15/13 dx IDC 1CM,
5/20/13 BRAC 1&2 neg
5/28/13 lumpectomy and SNB, ER/PR/Her-2+, Nodes neg,positive margins
6/13/13 revision of margins . Now clear
6/26/13 first TCH
Chemo Ninja~kutaki Zika Zukuchiri
10/18/13-Bx of calcification-neg whew
11/7/13 Started Radiation.
01/2014- Started Tamoxifen
06/09/14-Steriotactic BX left breast calcification-Benign
06/18/2014-completed one year of Herceptin!
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Old 07-27-2013, 08:59 PM   #8
KsGal
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Re: Mosquitoes and Herceptin

I haven't noticed a difference since being on Herceptin, but I do know here where I live there are far more mosquitoes this year than last year.
Maybe we need to design you a lovely citronella perfume! Or a bug zapper necklace.
Many years ago at my wedding reception, my wedding planner accidentally purchased citronella candles for all the tables at my reception. You could smell that reception clear out in the parking lot. I bet there wasn't a mosquito for MILES AND MILES.
Anyway...I wish I had some real advice for you, but I don't know how to keep them away other than bug repellents or Skin So Soft. My mosquito bites swell up quite a bit...I take Benadryl to help with that and the itching. Hope those pesky little guys give you a break!
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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Old 07-27-2013, 10:30 PM   #9
BonnieR
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Re: Mosquitoes and Herceptin

Denise makes a good observation. We want to avoid irritations that could cause a lymph edema flair up As hard as it is, scratching should be avoided! Does calamine lotion help with the itch?
The question is a good one too. Intriguing It seems possible since our body chemistry is certainly under siege Hope you find some solutions and answers
Keep the faith
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 08-06-2013, 10:32 AM   #10
norkdo
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Re: Mosquitoes and Herceptin

i have always been a mossie magnet. this summer when it, and poison ivy hit, i followed the advice of a gal's post online and had success: first thing in a.m. and when u come home from work: shower. then in the shower pour witch hazel or any astringent over the area and rub it in. Then pour calamine lotion and rub that in. Then blow dry body til all liquids are dry. the last part is the most important.
__________________
fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
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