Hi Deb,
I don't know how far you are from the univerity if Indianapolis Cancer Center, however; we got outstanding service for their staff over the phone and we live in Canada. They provided us with chemo procols and a referal to one of the top breat Cancer oncs. in Canada. The head Oncologist in Indianapolis is Dr. Kathy Miller and she still calls her collegue in Toronto, Dr. Maureen Trudeau about Linda's progress. Dr. Miller fast-tacked Linda to an appointment with Dr. Trudeau although we live 1-1/2 hours from the hospital.
In case you want to follow through, Her oncology research nurse is Anita Rush-Taylor. Her number is 317-278-6797. They are amazing people. Anita's e-mail is:
arushtay@iupui.edu
If you want to call me if you need more info before you proceed: 519-896-1059. Dr. Miller is heading-up dozens of clinical trials and has been instrumental in Linda's recovery.
A word of advice (and I never give advice); don't be too proud or ashamed or what-ever to call other medical experts because through my limited experience, they will alays go out of their way to help. As professionals, they all understand the gravity of a situation where a human life is at risk.
Good luck,
Al