Three Year Anniversary.....NED....Fundraising Idea
My operation was either the 15th, 16th or 17th of November, 2004....I just can't remember so here I am right in the middle ....... celebrating my third year NED.
I have to thank everyone here for having three wonderful, calm, thoughtful, "connected" (my children are grown and gone now and I live alone but am never lonely when I can turn to this site...day or night....and I do!!!) years. I have learned so much about this disease and this knowledge has comforted me through many fears. I have found it difficult to watch so many of our beloved sisters pass during these years and remember well their posts.....sharing and caring for others.
I mentioned my fundraising idea in the title so that perhaps we could get some discussion going. I would love to see a documentary DVD made of this site containing interviews with Christine and Joe (natch), survivors, Dr's .....including Dr. Slamon of course. This documentary could be shown on TV but also sold on the site and elsewhere to raise funds for Her2support to direct as they wish. I think this would be much easier to produce than a book actually and perhaps there are some on the site who have some special knowledge about doing this. Not to be morbid but I believe people live Christine, Joe, Dr. Slamon and others on the site MUST be interviewed and recorded for history now.....you just never know what the future holds.......
love to you all,
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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