tongue and lip neuropathy

[dhealey]

I have been out of treatment since Jan. 2008 (finished herceptin, finished chemo Feb. 2007) About two months ago I started having neuropathy in my tongue and lips. Words don't always come out like they should when talking, very frustrating. I had an MRI of Brain last week which showed nerve damage to the 9th cranial nerve which is known as the glossoalpharyngeal nerve. They say this is the cause of the neuropathy, but don't know what has caused the damage. I am to have a repeat MRI in 10 weeks. They also did alot of bloodwork and vitamin levels all were normal except my vitamin D level was low. I am now taking 50,000 units of vitamin D three times a week. They don't think this is the cause of the neuropathy though. My question is has anyone on the boards had trouble with neuropathy in the tongue and lips? If so what was the cause and how was it treated. Anyone else have a low Vitamin D level? I know there are alot of studies going on with the corralation of low vitamin D and breast cancer. How much is a safe supplement? Too much is not good either. I would deeply appreciate anyone's input.