update and query

[Joy]

Hi brave ones, Just wanted to come to you with an tiny update and a question to anyone on Herceptin dm 1. I checked in with blood work yesterday and It looks like my CEA has come down a lot and my CA2729 is stablizing. My AST/ALT have dropped and are stablibizing, but the Alkphos is still high. I have had 2 cycles of the drug and will have the third either next week or the week after (starting to lose my mind with all of the appointments). I have my first CT this morning, so maybe I am pre-testal, I don't know. Does it seem as though the drug is working? I guess I had naive higher hopes for better blood results. The NP reminded me that you have to stop the boat all the way before you can put it in reverse. So I am trying to remain hopeful. I am grateful for the good things in the reports, but just, obviously want some regression of disease.

I am leaving today with Luca to go see my parents in Pagosa Springs, CO and my kids are going to Illinois with their dad for a week to see their grandparents. I have been looking forward to this trip for months and now especially as my dad has been very ill the last 2 months. He seems to be on the mend, but doesn't sound right when I talk to him on the phone. It is the big meeting of the parents and the boyfriend and time for Luca and I to be togther a lot. I'd like to not worry about this dumb disease while I am trying to focus on my parents and enjoy time with the most wonderful man I have ever known. But I keep getting this fear that after all these years time is really running out. Soooo, I guess I could use any encouragement as well as personal experience reminders on this drug.

Otherwise I have been having fun with kids and friends and boyfriend. I went to the first Mile High Music Festival this last weekend with my best friend and Luca and I am happy to say that at 40 we can still hang! It was 100 degrees and no shade and we saw great bands (Steve Winwood, Spoon, Tom Petty, Martin Sexton, Flobots, Rodriego y Gabriella and Dave Mattews) and danced and sang and laughed and ran through a ginormous sprinkler and saw a lot of bad tattoos. My feet and back were a little sore after it all, but I feel fully recovered now. Having times like that is so precious and reminds me of how great life is and how much I want it to continue, but I am feeling that nagging, stupid, unfair uncertainty.

I love you guys and want you to know that the information shared here on the progress being made in cancer treatment is such a lifeline and I am so very thankful for all of you and your wisdom, courage and brains!!!!