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12-09-2006, 08:23 AM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Sad News - Hope has passed away.
Hope's daughter, Julissa, called Christine yesterday to tell her of her Mom's passing earlier in the day. She had been under hospice care for a few weeks.
Hope was one of our original members who joined this board shortly after her diagnosis in 2002. She had been an active participant in many of our local events here in San Diego.
Our prayers go out for her family.
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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12-09-2006, 10:02 AM
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#2
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am so sorry to hear of Hope's passing. I will be praying for her family as they go through this difficult time. I can't help but feel sad to hear that another board member has passed from this terrible disease.
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12-09-2006, 10:08 AM
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#3
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Healing prayers and hugs being sent to Hope's family.
Karen
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12-09-2006, 10:17 AM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Sorry
So sorry to hear this sad news and will be remembering Hope and her family in my thoughts and prayers.
Tricia
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12-09-2006, 11:05 AM
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#5
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Keeping Hope's family in my prayers. I am sorry to read this.
Hugs and Prayers,
Lexi
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12-09-2006, 11:23 AM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Dear Angel Hope
You fought the battle royal. It seems you had mets from the time I met you early in this web site, when I too had bad mets. You had some encouraging words for me "back when," and I am wishing you peace and eternal rest.
You have earned it, my angel friend.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-09-2006, 11:35 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi,
I am so sad to read this message. I too, had enjoyed reading Hope's encouraging messages. My thoughts go out to her family.
Best regards,
Barbara H.
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12-09-2006, 11:44 AM
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#8
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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I am so saddened to hear of Hopes passing. My thoughts and prayers are with Hopes family and friends.
Marcia
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12-09-2006, 12:15 PM
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#9
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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My heart goes out to Hope's family. It is so sad when a board member passes away from this dreadful disease. I'm just thankful that Hope had her family and friends with her for support. I will keep her family in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-09-2006, 01:30 PM
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#10
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Senior Member
Join Date: Oct 2005
Posts: 823
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Hope's family will be in my prayers. I know God will wrap his arms around the family during this most difficult time and sad time.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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12-09-2006, 02:58 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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I will keep her family...
in my prayers. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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12-09-2006, 03:10 PM
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#12
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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So sorry to hear we have lost another sister to this disease. May the family find peace and healing in her memories. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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12-09-2006, 03:24 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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i am also saddened by Hope's passing. She has been so supportive and giving.
Lindaw
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12-09-2006, 04:35 PM
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#14
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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I am so sorry to hear this news. My thoughts and prayers go out to Hope's family and friends at this difficult time.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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12-09-2006, 07:37 PM
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#15
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Blessings and prayers go to Hope's family from mine.
<3Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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12-09-2006, 09:04 PM
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#16
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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So very sorry Julissa. I hope your family can find some peace. Maybe God needed her home early. BB
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12-10-2006, 01:51 PM
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#17
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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My most sincere condolences to Hope and her family at this time. I am so saddened at yet another passing of one of the forum members. It is so sad and difficult to hear this news. My heart goes out to the entire family.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-10-2006, 02:18 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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Very sad news. She has no pain anymore and is in a better place.
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12-10-2006, 04:25 PM
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#19
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Senior Member
Join Date: Nov 2006
Location: West Virginia
Posts: 105
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All is Well
I decided to finally post because I logged on this evening and read that Hope had passed away. I have never met or even "spoke" with her, but I suppose it was a reality check. I guess her death was expected, but there is a brief period between life and death that we all struggle with. I think it is the fear of the unknown and the fear of what is to come...and a fear of life without them. It's the time when you can only hope there is peace and closure and the words that have never been said are shared.
I truly feel a deep down pain for her family and friends. I have been on that end of cancer. Losing my dad and my best friend, my grandmother, to lung cancer...I know what it is to struggle for each breath and suffer with the knots in your heart. There is no way to describe that pain, right?
Anyway, a friend sent this to me after my dad passed and I wanted to share it with someone, anyone who might appreciate it, especially during this time of the year.
Merry Christmas, Hope
All is Well. Death is nothing at all. I have only slipped away into the next room. I am I, and you are you. Whatever we were to each other, that we still are. Call me by my old familiar name, speak to me in the easy way which you always used. Put no difference in your tone, wear no forced air of solemnity or sorrow. Laugh as we always laughed at the little jokes we enjoyed together. Pray, smile, think of me, pray for me. Let my name be ever the household word that it always was, let it be spoken without effect without the trace of a shadow on it. Life means all that it ever meant. It is the same as it ever was; there is unbroken continuity. Why should I be out of mind because I am out of sight? I am waiting for you, for an interval, somewhere very near, just round the corner. All is well.
Henry Scott Holland
1847-1918
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12-10-2006, 05:49 PM
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#20
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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My deepest sympathy and prayers to Julissa and her family is the loss of our dear Hope....and she was just as her name implys to so many of us....may you be comforted knowing that she is not in pain anymore...she is an angel watching over all of us.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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