treatment update and tykerb

[Patty H]

After testing from my radiation showed growth in my lung met and new bone mets, I met with my oncologist today. I had printed out what Joe had sent about compassionate use tykerb. I had already called the number and they were sending me a package to take to my Dr. My package didn't arrive till after I got home from 100 mile round trip. Anyway my Dr. is going to try and get it for me. He said to bring the package as soon as it arrive. It really doesn't have a lot of information for the Dr. He has to call and get all the information. The paper work did say you had to have several test. I am hoping since I had a pet and c-scan and a MRI this month that I won't have to repeat them. They did mention a mugga and I think I have to have a brain MRI. The only drawl back is you have to take xeloda with it and both times I took xeloda I ended up in the hospital. But my Dr. said we would try in on a smaller dose. I am really excited about this. Patty H