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Leticia in Germany has brain mets, has had previous treatment but is having a crainiotomy TODAY. I screwed up and didn't see her email to me on Saturday, pleading for information....... but here is what she wrote:
"Patty, could you please write for me in the HER2-neu forum and ask if someone have had experience with a brain Op. I wish I could do it by myself, but my eyes are worse every hour, but I believe I can still read the answers. Could you please do it as soon as posible, it may help me to avoid being so scared....thank you in ahead."
And HERE is her previous email from Friday to me:
"Dear Patty,
I haven´t written since a long time, because everything was so unsure that I didn´t want to disturb you without reason. Now there is a reason:
In my latest scan there were found 2 more lesions. It means, all 4 lesions I am having now are in fact the old ones which are growing again. It was planned (as I told you before) to do the stereotactic treatment next week, but doctors found out by the new PET scans in my head that the metastasis which were found for about 6 months whith the MRT are actually the one already treated last year. All of them! So it is not possible to try a local treatment now.
You can imagine how scared I am, because I was thinking the whole time to get GK or similar, but as I had the 2 PET scans, the neurologists told me it was not posible anymore.
The operation is planned for the 18th, but I am still very confused and shocked."
Direct experience would be most helpful to Leticia, but I know she would welcome whatever support you could provide.
thanks,
pattyz
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