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Re: ? about Tykerb Duration
I would just tell you onc you want to stay at full dose, and dose reduce on your own. You won't ever run out of pills that way! I was at 5 pills a day, but after 5 months I developed severe diahrrea. I now vary my dose based on my bowels. Some days I take 4 (found out max dose should be 1000mg when given with herceptin), some days I take none. And everything in between. After 2 months of the varied doses, my scan showed continued significant regression, so obviously the dose variances don't hurt. And no more diarrhea! I would never go higher on the dose without doctor approval, but going lower isn't going to make you sicker. I am so happy you have been NED for so long. I hope to be there someday!
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March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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