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Sheila · 08-22-2012, 06:48 AM

First of all you deserve to be treated with respect, and not blown off......I would go to the nurse or pharmacy and ask that the powdered Herceptin be reconstituted with bacteria static water then placed in a bag of IV solution with NO alcohol....also, see what is in the flushes they give you in your port like heparin and the flush of nacl or whatever they are using as these too can contain alcohol.....they contain something because I can taste it when they inject it. As far as the MRI....some insurances fight paying as they are expensive, which in turn makes Drs reluctant to order.......so do what I do, fake a headache that won't go away with a hint of dizziness or a touch of blurred vision..you will get your MRI...and the insurance will pay...we as women are accused of "faking it" all the time.so we might as well take advantage of it...third, look for a new oncologist,
This guy sounds like a pr_ _ _......and the word ISN'T prince!!!!
Good Luck!!!

08-22-2012, 06:48 AM	#5
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Re: I couldn't make this up if I tried First of all you deserve to be treated with respect, and not blown off......I would go to the nurse or pharmacy and ask that the powdered Herceptin be reconstituted with bacteria static water then placed in a bag of IV solution with NO alcohol....also, see what is in the flushes they give you in your port like heparin and the flush of nacl or whatever they are using as these too can contain alcohol.....they contain something because I can taste it when they inject it. As far as the MRI....some insurances fight paying as they are expensive, which in turn makes Drs reluctant to order.......so do what I do, fake a headache that won't go away with a hint of dizziness or a touch of blurred vision..you will get your MRI...and the insurance will pay...we as women are accused of "faking it" all the time.so we might as well take advantage of it...third, look for a new oncologist, This guy sounds like a pr_ _ _......and the word ISN'T prince!!!! Good Luck!!! __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin Last edited by Sheila; 08-22-2012 at 08:52 AM..