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Old 06-14-2014, 07:21 AM   #2
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Re: Hello NEW Member Looking for info

First of all... take a deep breath!!! Your sister is lucky to have you. You didn't mention what type of chemo she is getting, they all come with a huge range of side effects. Does your oncology center have an on call person to call during off hours with questions? The neulasta shot caused me intense bone pain which lasted through my entire chemo treatment and beyond. Fortunately a few months later the pain greatly diminished.
Weekends can be tough because it seems everything shuts down...what can seem critical on a Friday somehow gets put off till Monday when "the system" starts up again!!
This forum is a great place to come with your questions because pretty much we have seen and experienced just about everything!!
Hang in there...keep a notebook handy to jot down all concerns, and take it to all appointments so you can document what treatments your sister is getting.
Best to you and your sister!!!
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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